$3 Million to Provide Foundational Knowledge: The Pediatric Cell Atlas of Skeletal Muscle
On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...
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Rachel Alvarez
- Sep 3, 2021
- 1 min
2021 SciFam Content Now Available on YouTube
Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Terry Selucky
- Aug 31, 2021
- 2 min
Congratulations Dr. Erdmann!
Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...
Cure CMD
- Apr 30, 2021
- 2 min
SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Terry Selucky
- Feb 3, 2021
- 5 min
Meet Jaclyn: Scientist, Affected Individual and Advocate
Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...
Rachel Alvarez
- Oct 23, 2020
- 2 min
New & Improved CMDIR Now Live!
The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Terry Selucky
- Oct 22, 2020
- 1 min
You Have the Power to Drive Research
This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...
Terry Selucky
- Aug 19, 2020
- 5 min
Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Rachel Alvarez
- May 6, 2020
- 4 min
Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University
Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...
Cure CMD
- May 2, 2020
- 2 min
New and Improved CMD International Registry
After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...
Terry Selucky
- May 2, 2020
- 2 min
A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
Rachel Alvarez
- Feb 10, 2020
- 4 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! We’ve covered the history of drug...
Rachel Alvarez
- Feb 8, 2020
- 9 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
- Feb 7, 2020
- 6 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
Rachel Alvarez
- Feb 6, 2020
- 4 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
Terry Selucky
- Jan 17, 2020
- 4 min
Significant Updates to LGMD Definitions and Nomenclature
Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...
Gustavo Dziewczapolski
- Nov 12, 2019
- 6 min
2019 SciFam Lay Summary: Stronger Together
A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A...
Terry Selucky
- Nov 1, 2019
- 5 min
Meet Veronica Pini: Researcher, Community Member
“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...
Terry Selucky
- Oct 31, 2018
- 2 min
Cure CMD Co-Funds SEPN1 Research Project with AFM
Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...
Terry Selucky
- Sep 13, 2018
- 2 min
Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK
Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...