An Exciting Milestone for LAMA2-CMD
Expanding on nearly a decade of partnership in the life sciences, the Translational Sciences team at UPMC Enterprises and the University...
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Cure CMD
- Jul 31
- 1 min
Team Cure CMD Raises $140K to Support CMD Research
This year, the MDBR's Team Cure CMD raised $140k for research.
Cure CMD
- Jul 11
- 2 min
A Profound Void in our Hearts: The Loss of Prof. Jeanette Erdmann
Prof. Jeanette Erdmann, CMD Researcher and CMD-affected individual passed away unexpectedly after a tragic fall.
Cure CMD
- Nov 21, 2022
- 3 min
Cure CMD Announces 2022 Research Grants
$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...
Terry Selucky
- Apr 4, 2022
- 4 min
$3 Million to Provide Foundational Knowledge: The Pediatric Cell Atlas of Skeletal Muscle
On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...
Rachel Alvarez
- Sep 3, 2021
- 1 min
2021 SciFam Content Now Available on YouTube
Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Terry Selucky
- Aug 30, 2021
- 2 min
Congratulations Dr. Erdmann!
Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...
Cure CMD
- Apr 30, 2021
- 2 min
SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Terry Selucky
- Feb 3, 2021
- 5 min
Meet Jaclyn: Scientist, Affected Individual and Advocate
Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...
Rachel Alvarez
- Oct 23, 2020
- 2 min
New & Improved CMDIR Now Live!
The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Terry Selucky
- Oct 21, 2020
- 1 min
You Have the Power to Drive Research
This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...
Terry Selucky
- Aug 19, 2020
- 5 min
Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Rachel Alvarez
- May 6, 2020
- 4 min
Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University
Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...
Cure CMD
- May 2, 2020
- 2 min
New and Improved CMD International Registry
After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...
Terry Selucky
- May 2, 2020
- 2 min
A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
Rachel Alvarez
- Feb 10, 2020
- 4 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! We’ve covered the history of drug...
Rachel Alvarez
- Feb 8, 2020
- 9 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
- Feb 7, 2020
- 6 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
Rachel Alvarez
- Feb 6, 2020
- 4 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
Terry Selucky
- Jan 17, 2020
- 4 min
Significant Updates to LGMD Definitions and Nomenclature
Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...
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