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    Search
    $3 Million to Provide Foundational Knowledge: The Pediatric Cell Atlas of Skeletal Muscle
    Terry Selucky
    • Apr 4
    • 4 min

    $3 Million to Provide Foundational Knowledge: The Pediatric Cell Atlas of Skeletal Muscle

    On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...
    2021 SciFam Content Now Available on YouTube
    Rachel Alvarez
    • Sep 4, 2021
    • 1 min

    2021 SciFam Content Now Available on YouTube

    Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
    Congratulations Dr. Erdmann!
    Terry Selucky
    • Aug 31, 2021
    • 2 min

    Congratulations Dr. Erdmann!

    Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...
    SciFam 2021 is Around the Corner
    Cure CMD
    • May 1, 2021
    • 2 min

    SciFam 2021 is Around the Corner

    An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
     Meet Jaclyn: Scientist, Affected Individual and Advocate
    Terry Selucky
    • Feb 3, 2021
    • 5 min

    Meet Jaclyn: Scientist, Affected Individual and Advocate

    Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...
    New & Improved CMDIR Now Live!
    Rachel Alvarez
    • Oct 23, 2020
    • 2 min

    New & Improved CMDIR Now Live!

    The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
    You Have the Power to Drive Research
    Terry Selucky
    • Oct 22, 2020
    • 1 min

    You Have the Power to Drive Research

    This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...
    Cure CMD Announces 2020 Research Grant Recipients
    Terry Selucky
    • Aug 20, 2020
    • 5 min

    Cure CMD Announces 2020 Research Grant Recipients

    Funding Continues in a Challenging Year
    Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University
    Rachel Alvarez
    • May 7, 2020
    • 4 min

    Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University

    Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...
    New and Improved CMD International Registry
    Cure CMD
    • May 2, 2020
    • 2 min

    New and Improved CMD International Registry

    After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...
    A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
    Terry Selucky
    • May 2, 2020
    • 2 min

    A Record Number of Proposals in response to Cure CMD's 2020 Grant Call

    With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
    Rachel Alvarez
    • Feb 10, 2020
    • 4 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

    Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! We’ve covered the history of drug...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 8, 2020
    • 9 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 7, 2020
    • 6 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 6, 2020
    • 4 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
    Significant Updates to LGMD Definitions and Nomenclature
    Terry Selucky
    • Jan 17, 2020
    • 4 min

    Significant Updates to LGMD Definitions and Nomenclature

    ​Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...
    2019 SciFam Lay Summary: Stronger Together
    Gustavo Dziewczapolski
    • Nov 13, 2019
    • 6 min

    2019 SciFam Lay Summary: Stronger Together

    A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A...
    Meet Veronica Pini: Researcher, Community Member
    Terry Selucky
    • Nov 2, 2019
    • 5 min

    Meet Veronica Pini: Researcher, Community Member

    ​​“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...
    Cure CMD Co-Funds SEPN1 Research Project with AFM
    Terry Selucky
    • Nov 1, 2018
    • 2 min

    Cure CMD Co-Funds SEPN1 Research Project with AFM

    Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...
    Terry Selucky
    • Sep 13, 2018
    • 2 min

    Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK

    Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...
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