Cure CMD Announces 2022 Research Grants
$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...
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Terry Selucky
- Apr 4, 2022
- 2 min
Cure CMD Awarded Additional Year of Funding through the Rare As One Network
Cure CMD is thrilled to announce a third year of funding from the Chan-Zuckerberg Initiative’s Rare As One Network, an effort to...
Cure CMD
- Sep 3, 2021
- 2 min
The Benefits of Legacy Giving
Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Lani Knutson, Advocacy Team Leader
- Oct 23, 2020
- 2 min
8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming
Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...
Terry Selucky
- Aug 19, 2020
- 5 min
Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Terry Selucky
- May 5, 2020
- 2 min
Giving Tuesday Now
Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...
Cure CMD
- May 2, 2020
- 1 min
Quick News For You
Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Terry Selucky
- May 2, 2020
- 2 min
A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
Terry Selucky
- Feb 14, 2020
- 2 min
Plan a Local CMD-Focused Event
Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...
Terry Selucky
- Feb 3, 2020
- 3 min
Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network
The 11-Year-Old Nonprofit Will Receive a Two-Year Grant for Capacity-Building Efforts LAKEWOOD, CA, USA (Feb. 3, 2020) — Cure CMD is...
Terry Selucky
- Oct 31, 2018
- 2 min
Cure CMD Co-Funds SEPN1 Research Project with AFM
Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...
Terry Selucky
- Sep 13, 2018
- 2 min
Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK
Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...
Terry Selucky
- Aug 18, 2018
- 5 min
2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research
Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Rachel Alvarez
- May 11, 2018
- 1 min
Research Grant Award for Collagen VI
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...
Rachel Alvarez
- May 1, 2018
- 1 min
Two Research Grant Awards for LAMA2
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...
Rachel Alvarez
- May 1, 2018
- 1 min
Research Grant Award for SEPN1
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...
Terry Selucky
- Apr 30, 2018
- 1 min
The Results are in! Cure CMD’s First LA Marathon a Great Boon for CMD Research
The second weekend of March brought the CMD community together in a brand-new way this year with the Los Angeles Marathon, when more than...
Terry Selucky
- Apr 27, 2018
- 2 min
Gene Correction Therapy Study, Seed-Funded by Cure CMD, Continues through MDA Grant
What: A $180,000 grant has just been announced by the Muscular Dystrophy Association (MDA) to fund the exploration of potential of gene...
Cure CMD
- Apr 17, 2018
- 3 min
2018 Tax Law: What We Know for Sure
Cure CMD and the impact of the new tax law As many of you know, there is something about living with a rare condition that gives affected...
Terry Selucky
- Mar 27, 2018
- 4 min
Parents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan Di
Parents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...
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