An Exciting Milestone for LAMA2-CMD
Expanding on nearly a decade of partnership in the life sciences, the Translational Sciences team at UPMC Enterprises and the University...
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Cure CMD
Jul 31, 20231 min
Video Game Livestream and Fundraiser
Check out Community Member Kierra Sunris in her nightly Twitch livestream throughout July!
Cure CMD
Jul 31, 20231 min
Team Cure CMD Raises $140K to Support CMD Research
This year, the MDBR's Team Cure CMD raised $140k for research.
Cure CMD
Jun 28, 20231 min
Grateful for Our Supporters: Bequests and Other Planned Giving Opportunities
Cure CMD has been blessed with gifts in many forms over the years from friends, families, and others with a wide variety of connections...
Cure CMD
Nov 21, 20223 min
Cure CMD Announces 2022 Research Grants
$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...
Terry Selucky
Apr 4, 20222 min
Cure CMD Awarded Additional Year of Funding through the Rare As One Network
Cure CMD is thrilled to announce a third year of funding from the Chan-Zuckerberg Initiative’s Rare As One Network, an effort to...
Cure CMD
Sep 3, 20212 min
The Benefits of Legacy Giving
Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Lani Knutson, Advocacy Team Leader
Oct 23, 20202 min
8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming
Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...
Terry Selucky
Aug 19, 20205 min
Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Terry Selucky
May 5, 20202 min
Giving Tuesday Now
Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...
Cure CMD
May 2, 20201 min
Quick News For You
Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Terry Selucky
May 2, 20202 min
A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
Terry Selucky
Feb 14, 20202 min
Plan a Local CMD-Focused Event
Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...
Terry Selucky
Feb 3, 20203 min
Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network
The 11-Year-Old Nonprofit Will Receive a Two-Year Grant for Capacity-Building Efforts LAKEWOOD, CA, USA (Feb. 3, 2020) — Cure CMD is...
Terry Selucky
Oct 31, 20182 min
Cure CMD Co-Funds SEPN1 Research Project with AFM
Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...
Terry Selucky
Sep 13, 20182 min
Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK
Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...
Terry Selucky
Aug 18, 20185 min
2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research
Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Rachel Alvarez
May 11, 20181 min
Research Grant Award for Collagen VI
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...
Rachel Alvarez
May 1, 20181 min
Two Research Grant Awards for LAMA2
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...
Rachel Alvarez
May 1, 20181 min
Research Grant Award for SEPN1
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...
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