Meet Our Partners
Finding a treatment or cure is a TEAM approach. We are not in this alone and there is strength in numbers. Cure CMD has actively pursued partnerships with other organizations to help drive momentum, share strategies and resources. Partnership may come in the form of co-funding a research grant, co-sponsoring annual infrastructure costs, such as the CMDIR, and co-hosting Webinars to provide the community with information on care and management. Cure CMD embraces partnership as key to meeting our mission: finding a treatment and cure for the CMDs and related limb girdle spectrum disorders.
The DGM is a self-help association representing the interests of all people in Germany with a neuromuscular disease.
Learn more at: dgm.org
ELI Foundation Puerto Rico promotes positive change in those living with LMNA-related Congenital Muscular Dystrophy, and supports their families.
Learn more at: facebook.com/ELIFoundationPR
A Foundation Building Strength (AFBS) is a non–profit organization dedicated to finding treatments for Nemaline Myopathy.
Learn more at buildingstrength.org.
Global Genes works to support the global rare disease community with information and resources, community connections, and guidance on how to become effective advocates.
Learn more at globalgenes.org
I Stay Home For Rare™ is a campaign and fund offering immediate financial support to those in need during COVID-19. Join us in solidarity with those staying home protecting the lives of children, family members, and friends living with rare diseases.
Learn more at ISHFR.org.
ImpulsaT (move on) - is a Spanish nonprofit association representing affected individuals with LAMA2-CMD, with the goal to promote and finance research lines that contribute to the development of treatments and a cure.
Learn more at impulsat.org.
The Andrés Marcio Foundation is a nonprofit organization based in Spain whose mission is to find a cure for LMNA-CMD (Laminopathy).
Learn more at fundacionandresmarcio.com.
Living in the Light is a patient advocacy initiative utilizing the potency of fine art photography, compelling personal narratives, & engaging film making to educate the biotech & medical community about the realities of rare diseases & the unprecedented effect they have on families & daily life. Their mission: empowering families and individuals affected by rare diseases to be seen and heard as they relay their stories and advocate for their needs.
Learn more at frompatienttoperson.com.
The LGMD2I Research Fund is a non-profit foundation whose mission is to expedite the development of a treatment for Limb Girdle Muscular Dystrophy 2I (LGMD2I). Learn more at lgmd2ifund.org.
MightyMaje is a private initiative from Germany, whose task is to advance in LMNA-CMD (Laminopathy).
Learn more at mightymaje.org.
Muscular Dystrophy United Kindom (MDUK)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions in the United Kingdom.
Learn more at musculardystrophyuk.org
The NOA Project was founded to give children fighting Collagen VI Myopathies the gift of movement.
Learn more at thenoaproject.com
Noelia Foundation is a non-profit organization based in Spain, whose goal is to promote disease awareness and support international research for COL6-CMD.
Learn more at fundacionnoelia.org.
NORD is dedicated to individuals with rare diseases and the organizations that serve them.
Learn more at rarediseases.org
The RYR-1 Foundation was created to support research leading to effective treatments for RYR1 related disorders. Learn more at ryr1.org.
Established in 2008, the Speak Foundation is a nonprofit organization with a vision to be a voice for those living with limb girdle muscular dystrophy.
Learn more at thespeakfoundation.com
SAM is an Ireland-based nonprofit organization whose goal is to provide funding for research toward treatments and a cure for LAMA2-CMD.
Learn more at helpsam.info
TREAT-NMD is a global organization bringing together leading specialists, patient groups and industry representatives to ensure preparedness for trials and therapies while promoting best practice.
Learn more at treat-nmd.org
Team SuperHjalle Running Project was founded by the Lindblad Family of Sweden who run races throughout the year to raise funds for LMNA research.
Learn more at facebook.com/teamSuperHjalle.
Team Titin is an advocacy group dedicated to supporting clinicians, researchers and families with titin related muscle and heart disorders.
Learn more at titinmyopathy.com.
Stichting Voor Sara is a Dutch foundation working to promote research and public communication for LAMA2-CMD.
Learn more at voorsara.nl
(CNM – Together Strong!) is a self-help association for myotubular myopathy and other centronuclear myopathies (CNM = ZNM) with a goal to connect those affected and their families, and to support each other in their daily lives. They also actively invest in research for these conditions.
Learn more at znm-zusammenstark.org.