Meet Our Partners
Driving research and supporting affected individuals and families with CMD is a TEAM effort. Cure CMD actively pursues partnerships with other organizations working to drive momentum in the neuromuscular and rare disease space to co-fund research grants and infrastructure costs such as the CMDIR, and co-host events, conferences, and webinars. We are grateful to our partners and their work toward our common goal to identify treatments and support the affected community.
The French Muscular Dystrophy Association (AFM-Téléthon) is composed of patients and their families who are affected by a genetic, rare, progressive and severely disabling illness: neuromuscular diseases.
Learn more at afm-telethon.com
The Aubrey O’Sullivan Foundation was established to drastically accelerate the research and development of a treatment and cure for Reducing Body Myopathy. The lives of all children impacted by Reducing Body Myopathy and other FHL1 disorders depends on the expedited access to a life-saving therapy.
Learn more at curereducingbodymyopathy.com
CMDTR is a Turkish nonprofit organization founded to support the diagnosis and drug development for congenital muscular dystrophy, both domestically and internationally.
Learn more at: cmdtr.com
We are a parents-run non-profit organization whose mission is to find a cure for Distal Myopathy (MPD5) caused by mutation in ADSSL1 gene.
Learn more at: cure-adssl1.org
Cure LGMD2I a 501(c)(3) approved tax exempt public charity supporting research toward treatments for FKRP-Related CMD.
Learn more at curelgmd2i.com
Founded in 2017, the DCM Foundation is a non-profit organization with a mission to provide hope and support to patients and families with dilated cardiomyopathy through research, advocacy, and education.
Learn more at: dcmfoundation.org
The DGM is a self-help association representing the interests of all people in Germany with a neuromuscular disease.
Learn more at: dgm.org
ELI Foundation Puerto Rico promotes positive change in those living with LMNA-related Congenital Muscular Dystrophy, and supports their families.
Learn more at: facebook.com/ELIFoundationPR
A Foundation Building Strength (AFBS) is a non–profit organization dedicated to finding treatments for Nemaline Myopathy.
Learn more at buildingstrength.org.
Giving Strength Inc. is a non-profit organization supporting research and treatment for the rare genetic disorder, SELENON Related Myopathy.
Learn more at givingstrengthinc.org
Global Genes works to support the global rare disease community with information and resources, community connections, and guidance on how to become effective advocates.
Learn more at globalgenes.org
ImpulsaT (move on) - is a Spanish nonprofit association representing affected individuals with LAMA2-CMD, with the goal to promote and finance research lines that contribute to the development of treatments and a cure.
Learn more at impulsat.org
The Andrés Marcio Foundation is a nonprofit organization based in Spain whose mission is to find a cure for LMNA-CMD (Laminopathy).
Learn more at fundacionandresmarcio.com
LAMA2 France is an association of French-speaking families impacted by LAMA2 Congenital Muscular Dystrophy
Learn more at lama2.fr
Living in the Light is a patient advocacy initiative utilizing the potency of fine art photography, compelling personal narratives, & engaging film making to educate the biotech & medical community about the realities of rare diseases & the unprecedented effect they have on families & daily life. Their mission: empowering families and individuals affected by rare diseases to be seen and heard as they relay their stories and advocate for their needs.
Learn more at frompatienttoperson.com
The LGMD2I Research Fund is a non-profit foundation whose mission is to expedite the development of a treatment for Limb Girdle Muscular Dystrophy 2I (LGMD2I). Learn more at lgmd2ifund.org
LMNAcardiac.org is a network with focus on LMNA cardiac diseases, providing information and network for both patients and experts to be able to help and speed up research and development.
Learn more at: lmnacardiac.org
MightyMaje is a private initiative from Germany, whose task is to advance in LMNA-CMD (Laminopathy).
Learn more at mightymaje.org.
Muscular Dystrophy Canada’s mission is to enhance the lives of those affected by neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well-funded research.
Learn more at muscle.ca
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions in the United Kingdom.
Learn more at musculardystrophyuk.org
The NOA Project was founded to give children fighting Collagen VI Myopathies the gift of movement.
Learn more at thenoaproject.com
Noelia Foundation is a non-profit organization based in Spain, whose goal is to promote disease awareness and support international research for COL6-CMD.
Learn more at fundacionnoelia.org.
NORD is dedicated to individuals with rare diseases and the organizations that serve them.
Learn more at rarediseases.org
The Olivia Bloomfield Foundation was founded to carry on the light and legacy Olivia so fiercely championed.
Learn more at oliviabloomfieldfoundation.org
Patients Rising has developed a significant following of over 110,000 patients and caregivers and has guided more than 25,000 of them on their journeys to advocate for themselves and their loved ones to get the care and treatments they need to live a fulfilling life.
Learn more at patientsrising.org
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Established in 2008, the Speak Foundation is a nonprofit organization with a vision to be a voice for those living with limb girdle muscular dystrophy.
Learn more at thespeakfoundation.com
SAM is an Ireland-based nonprofit organization whose goal is to provide funding for research toward treatments and a cure for LAMA2-CMD.
Learn more at helpsam.info
TREAT-NMD is a global organization bringing together leading specialists, patient groups and industry representatives to ensure preparedness for trials and therapies while promoting best practice.
Learn more at treat-nmd.org
Team SuperHjalle Running Project was founded by the Lindblad Family of Sweden who run races throughout the year to raise funds for LMNA research.
Learn more at facebook.com/teamSuperHjalle
Team Titin is an advocacy group dedicated to supporting clinicians, researchers and families with titin related muscle and heart disorders.
Learn more at titinmyopathy.com
Stichting Voor Sara is a Dutch foundation working to promote research and public communication for LAMA2-CMD.
Learn more at voorsara.nl
(CNM – Together Strong!) is a self-help association for myotubular myopathy and other centronuclear myopathies (CNM = ZNM) with a goal to connect those affected and their families, and to support each other in their daily lives. They also actively invest in research for these conditions.
Learn more at znm-zusammenstark.org