Meet Our Partners

Finding a treatment or cure is a TEAM approach. We are not in this alone and there is strength in numbers. Cure CMD has actively pursued partnerships with other organizations to help drive momentum, share strategies and resources. Partnership may come in the form of co-funding a research grant, co-sponsoring annual infrastructure costs, such as the CMDIR, and co-hosting Webinars to provide the community with information on care and management. Cure CMD embraces partnership as key to meeting our mission: finding a treatment and cure for the CMDs and related limb girdle spectrum disorders.

Cure LGMD2I a 501(c)(3) approved tax exempt public charity supporting research toward treatments for FKRP-Related CMD. Learn more at

A Foundation Building Strength (AFBS) is a non–profit organization dedicated to finding treatments for Nemaline Myopathy. Learn more at

I Stay Home For Rare

I Stay Home For Rare™ is a campaign and fund offering immediate financial support to those in need during COVID-19. Join us in solidarity with those staying home protecting the lives of children, family members, and friends living with rare diseases. Learn more at

ImpulsaT (move on) - is a Spanish nonprofit association representing affected individuals with LAMA2-CMD, with the goal to promote and finance research lines that contribute to the development of treatments and a cure. Learn more at

The Joshua Frase Foundation (JFF) is dedicated to pressing research for a treatment and or cure for children affected with Myotubular Myopathy. Learn more at

The Andrés Marcio Foundation is a nonprofit organization based in Spain whose mission is to find a cure for LMNA-CMD (Laminopathy). Learn more at

Living in the Light

Living in the Light is a patient advocacy initiative utilizing the potency of fine art photography, compelling personal narratives, & engaging film making to educate the biotech & medical community about the realities of rare diseases & the unprecedented effect they have on families & daily life. Their mission: empowering families and individuals affected by rare diseases to be seen and heard as they relay their stories and advocate for their needs. Learn more at

The LGMD2I Research Fund is a non-profit foundation whose mission is to expedite the development of a treatment for Limb Girdle Muscular Dystrophy 2I (LGMD2I). Learn more at

Mighty Maje

MightyMaje is a private initiative from Germany, whose task is to advance in LMNA-CMD (Laminopathy). Learn more at

Noelia Foundation is a non-profit organization based in Spain, whose goal is to promote disease awareness and support international research for COL6-CMD. Learn more at

The RYR-1 Foundation was created to support research leading to effective treatments for RYR1 related disorders. Learn more at

SAM is an Ireland-based nonprofit organization whose goal is to provide funding for research toward treatments and a cure for LAMA2-CMD. Learn more at

Team SuperHjalle Running Project was founded by the Lindblad Family of Sweden who run races throughout the year to raise funds for LMNA research. Learn more at

Team Titin

Team Titin is an advocacy group dedicated to supporting clinicians, researchers and families with titin related muscle and heart disorders.  Learn more at

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Cure CMD

3217 E. Carson St. #1014
Lakewood, CA 90712 USA


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Copyright © 2020 Cure CMD

Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
extent allowable by law.  U.S. Federal Tax ID: 26-2640975