Meet Our Partners

Finding a treatment or cure is a TEAM approach. We are not in this alone and there is strength in numbers. Cure CMD has actively pursued partnerships with other organizations to help drive momentum, share strategies and resources. Partnership may come in the form of co-funding a research grant, co-sponsoring annual infrastructure costs, such as the CMDIR, and co-hosting Webinars to provide the community with information on care and management. Cure CMD embraces partnership as key to meeting our mission: finding a treatment and cure for the CMDs and related limb girdle spectrum disorders.

La Fundación Andrés Marcio is a nonprofit organization based in Spain whose mission is to find a cure for laminopathy, a severe type of congenital muscular dystrophy.

The Noelia Foundation, for affected individuals with Collagen VI-CMD, was created in honor of their son Adrià, diagnosed with COL6-CMD.  Noelia Foundation is a non-profit organization based in Catalonia, Spain.  Their goal is to promote disease awareness and support international research.

ImpulsaT (move on) - is the official Spanish nonprofit association representing the persons with LAMA2-CMD, with the goal to promote and finance research lines that contribute to the development of treatments and a cure.

Team SuperHjalle Running Project was founded by the Lindblad Family of Sweden who run races throughout the year to raise funds for LMNA research.

The LGMD2I Research Fund is a non-profit private foundation whose mission is to expedite the development of a treatment for Limb Girdle Muscular Dystrophy 2I (LGMD2I). Through its grant awards program, the LGMD2I Research Fund promotes basic research, fosters clinical trial readiness and supports translation of promising scientific discoveries into clinics. For more information on the LGMD2I Research Fund, please log onto lgmd2ifund.org.

Samantha Brazzo has been diagnosed with a progressive disease called Limb Girdle Muscular Dystrophy (LGMD2I). She is a beautiful little girl who faces physical challenges daily. In the midst of receiving Sammy’s diagnosis in 2010, the Brazzo Family established The Cure LGMD2i Foundation with the hopes of supporting the scientific efforts toward a treatment or cure for this debilitating disease. Although scientists are actively and aggressively working on a cure for this disease, without adequate funding, the research cannot continue to move forward at a rapid pace. With your help, we can provide these scientists with the financial support they need to achieve their mission of curing LGMD2I. We are a 501(c)(3) approved tax exempt public charity. In addition, we are a zero-cost non-profit organization, therefore; 100% of all donations will be used to provide an annual research grant. To find out more about our cause, please visit our website at: curelgmd2i.com.

A Foundation Building Strength (AFBS) is a non–profit organization dedicated to finding treatments for Nemaline Myopathy. For more information, please visit buildingstrength.org.

Team Titin

Team Titin is an advocacy group dedicated to supporting clinicians, researchers and families with titin related muscle and heart disorders.  For more information, please visit titimyopathy.com or contact Sarah Foye at curemyopathy@gmail.com

The Joshua Frase Foundation (JFF) is dedicated to continue forging a path by pressing research for a treatment and or a cure for children afflicted with CNM/MTM. JFF’s funding is over half the research dollars worldwide for this muscle disorder to date. The foundations funding has been used in advancing research in gene therapy and regenerative medicine. JFF has been a resource of information and support for families worldwide that struggle with the day to day commission to keep these children alive. For more information about the foundation or how you can make a difference in the lives of many, please log onto to joshuafrase.org.

The RYR-1 Foundation was started by members of the Goldberg Family, who have been affected by RYR-1 muscle disease (myopathy). Currently, there is no other organization that exists solely to advocate for and serve the needs of patients with RYR-1 myopathy. The goal of the Foundation is to fill this much-needed void. 
 
The mission of the RYR-1 Foundation is to support research leading to effective treatment or a cure for RYR-1 related diseases. 
 
To achieve this mission, the Foundation has several goals:
 
1) Support Research: The Foundation hopes to make grants to researchers interested in RYR-1 myopathy. As the only organization solely dedicated to RYR-1 myopathy, we hope to be able to promote research in this area. Developing a patient registry will also be key to promoting clinical trials of potential therapies. 
 
2) Physician Education: The vast majority of physicians have never heard of RYR-1 myopathy. The Foundation hopes to raise awareness through resources on this website, including the latest medical literature, as well as direct meetings with physicians around the world. 
 
3) Patient/family support and advocacy: Due to the rarity of RYR-1 myopathy, receiving this diagnosis can be an anxiety-provoking and isolating experience for a patient/family. It is hoped that this Foundation can serve as a resource for patients and their families. Initially, this will be done through this website and other forms of socal media. In the future, our goal will be to organize family meetings around the country. 

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Cure CMD

19401 S. Vermont Avenue
Suite J100

Torrance, CA 90502 USA

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Copyright © 2018 Cure CMD

Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
extent allowable by law.  U.S. Federal Tax ID: 26-2640975