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Lani Knutson
Oct 2, 20242 min read
Community Pulse: Legislative Priorities
Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.
Kelly Berger & Avery Roberts
Oct 1, 20243 min read
Affected Individuals Flourish with an Overseas Exchange Opportunity
CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.
Gustavo Dziewczapolski, Scientific Director
Sep 30, 20242 min read
One Step Closer to LAMA2-RD Clinical Trials: Modalis Therapeutics
Modalis Therapeutics program for LAMA2-RD gene therapy granted Rare Pediatric Disease Designation by FDA.
Gustavo Dziewczapolski, Scientific Director
Sep 23, 20245 min read
Research Update: LMNA
We are honored to support groundbreaking discoveries related to LMNA-CMD.
Cure CMD
Sep 1, 20242 min read
Workshop to Establish Subtype-Specific Care Recommendations for Congenital Muscular Dystrophy
We are thrilled to announce a new clinical workshop focused on establishing CMD subtype-specific care recommendations.
Kelly Berger & Avery Roberts
Aug 14, 20242 min read
Community Member Produces Groundbreaking Film
CMD Community Member & Executive Producer, Steve Way, releases groundbreaking film, Good Bad Things, in 50 AMC Theatres across the U.S.
Lani Knutson, Advocacy Team Leader
Aug 7, 20242 min read
Make Your Voice Heard - Vote!
One of the most important ways you can advocate is to vote.
Gustavo Dziewczapolski, Scientific Director
Aug 7, 20243 min read
Research Update: Dystroglycanopathy
We are honored to support groundbreaking discoveries related to Dystroglycanopathy.
Gustavo Dziewczapolski, Scientific Director
Jul 2, 20244 min read
Research Update: LAMA2
We are honored to support groundbreaking discoveries related to LAMA2-Related Dystrophy.
Lani Knutson, Advocacy Team Leader
Jul 1, 20242 min read
Cure CMD Seeks Advocacy Advisory Council Members
Join a newly forming council to help direct legislative priorities for the CMD community.
Kassidy C.
Jun 27, 20243 min read
Youth Advocate Attends First Virtual Hill Day
I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.
Gustavo Dziewczapolski, Scientific Director
Jun 6, 20242 min read
iMM Joins the MAGIC Consortium to Advance Research on Muscular Dystrophies
The MAGIC research team welcomes iMM to the consortium to add a cellular perspective to muscle-on-chip technologies
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