top of page
Search


Cure CMD in Attendance: Q1 2025 Scientific Conference Highlights
From shaping care guidelines in the Netherlands to tackling gene therapy challenges at the MDA Summit, Cure CMD is driving progress in research and care. Join us at the 2025 SciFam Conference this August in Philadelphia—registration is open!
Gustavo Dziewczapolski
May 63 min read


CMD Moms Share Their Journeys This Mother’s Day
In honor of Mother’s Day 2025, Cure CMD asked five incredible mothers to reflect on caregiving, resilience, and the unexpected joys of...
James Immekus
May 17 min read


Community Member Creates Children’s Book Featuring Characters Living With CMD
CMD Community Member, Ashley Burkman, has written a new book, “Move,” featuring characters living with congenital muscular dystrophy.
Kelly Berger & Avery Roberts
Apr 302 min read


Cure CMD’s Kelly Berger Spotlighted by University of Kentucky for Her Advocacy in Rare Disease and Disability Communities
Cure CMD’s Community Engagement Manager and tireless advocate for the rare disease and disability communities, was recently featured by her Alma mater's campus magazine, the University of Kentucky’s UKNow.
James Immekus
Apr 301 min read


What to Expect at the 2025 Scientific & Family (SciFam) Conference: Q&A with Rachel Alvarez
Q&A: Cure CMD’s Executive Director, Rachel Alvarez, gives in-depth insight into what to expect at the 2025 SciFam Conference.
Cure CMD
Apr 234 min read


Advocacy Alert: Recent Changes at HHS Could Threaten CMD Research
Click the button at the bottom of the page to mail your representative now! On April 1, the U.S. Department of Health and Human Services...
Lani Knutson
Apr 81 min read


2025 Rare Disease Week Recap
CMD Advocates gathered in Washington, DC to honor, celebrate & champion for those living with rare disease.
Kelly Berger & Avery Roberts
Mar 113 min read


Boston University Spotlights CMD Community Member Justin Moy and His Mission to Advance Research
CMD Community Member, Justin Moy, shares his journey with LAMA2-related muscular dystrophy and his life quest to cure his own condition.
Molly Callahan
Mar 111 min read
bottom of page