November 27, 2019

As part of the rare disease community, we are all advocates.  We push for inclusion and accommodations at schools, teach our doctors about our conditions, and try to stop parking on the white hashed area in the accessible parking spaces.  Rare Disease Week allows...

November 16, 2019

As you know, 2019 has been a big year for the CMD community. As 2019 SciFam recedes from view, we’re gathering the lessons we’ve learned and, coupled with your feedback, are continuing to make Cure CMD the place where you are represented, you are advocated for, and whe...

November 16, 2019

Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his own and is making the most of the college adventure. He's smart, has a razor-sharp wit, and has tons of friends. Last year, his hockey...

November 13, 2019

A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A Foundation Building Strength for Nemaline Myopathy, and Team Titin (Titinopathy) successfully convened in a tight but enlightening scien...

November 2, 2019

​​“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her Italian-accented English lilts as she tells her story. “I have always wanted to do a job related to the discovery of what’s unknown.”

As a rare...

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Cure CMD

19401 S. Vermont Avenue
Suite J100

Torrance, CA 90502 USA

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Copyright © 2018 Cure CMD

Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
extent allowable by law.  U.S. Federal Tax ID: 26-2640975