Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.

CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.

Modalis Therapeutics program for LAMA2-RD gene therapy granted Rare Pediatric Disease Designation by FDA.

We are honored to support groundbreaking discoveries related to LMNA-CMD.

We are thrilled to announce a new clinical workshop focused on establishing CMD subtype-specific care recommendations.

CMD Community Member & Executive Producer, Steve Way, releases groundbreaking film, Good Bad Things, in 50 AMC Theatres across the U.S.

One of the most important ways you can advocate is to vote.

We are honored to support groundbreaking discoveries related to Dystroglycanopathy.

We are honored to support groundbreaking discoveries related to LAMA2-Related Dystrophy.

Join a newly forming council to help direct legislative priorities for the CMD community.

I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.

The MAGIC research team welcomes iMM to the consortium to add a cellular perspective to muscle-on-chip technologies