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Stronger Together: Highlights from 2025 SciFam
Over 340 attendees gathered in Philadelphia for the 2025 Scientific & Family Conference, uniting families, clinicians, and researchers to share stories, advance care, and spark new collaborations. Highlights included 60 sessions, Kids Camp, young adult meetups, and the Scientific Symposium.
James Immekus
9 hours ago4 min read


CMD Advocacy Updates: Urge Your Senators to Reject H.R.1 Now
Learn how Cure CMD is fighting harmful legislation like the OBBBA, NIH funding cuts, and threats to Medicaid through strategic advocacy and rare disease policy action. Discover how you can help protect access to care, advance research, and make your voice heard.
Lani Knutson
Jun 252 min read


Cure CMD in Attendance: Q1 2025 Scientific Conference Highlights
From shaping care guidelines in the Netherlands to tackling gene therapy challenges at the MDA Summit, Cure CMD is driving progress in research and care. Join us at the 2025 SciFam Conference this August in Philadelphia—registration is open!
Gustavo Dziewczapolski
May 63 min read


What to Expect at the 2025 Scientific & Family (SciFam) Conference: Q&A with Rachel Alvarez
Q&A: Cure CMD’s Executive Director, Rachel Alvarez, gives in-depth insight into what to expect at the 2025 SciFam Conference.
Cure CMD
Apr 234 min read
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