CMD Advocacy Updates: Urge Your Senators to Reject H.R.1 Now
- Lani Knutson
- Jun 25
- 2 min read
Updated: Jul 1
Latest Update: 07/01/2025
The Senate has just passed a version of the One Big Beautiful Bill Act (OBBBA) with even deeper Medicaid cuts, putting millions at risk of losing coverage. The House is next—contact your Representative today and urge them to reject this dangerous legislation before it’s too late.
Latest Updates from Everylife Foundation:
The One Big Beautiful Bill Act (H.R.1) was passed by the House of Representatives on May 22 and is now awaiting further action in the Senate. The bill includes new work requirements mandating a minimum level of employment, hours worked, or volunteer activity in order to qualify for Medicaid health coverage. It is estimated that millions of people could lose health insurance as a result of these provisions, reducing the ability to receive medical treatment, at-home care assistance, medical equipment, and the medication they need to live their engaged lives.
Have a Few More Minutes to Spare?
Take a look at the other action alerts on the EveryLife Foundation’s website. We encourage you to speak out to your Members of Congress about:
Reauthorization of the Rare Pediatric Disease Priority Review Voucher program by passing the Give Kids a Chance Act of 2025 (H.R.1262 / S.932) — this program is designed to incentivize the development of therapies for hard-to-study pediatric rare diseases.
Protecting rare disease experts, funding, and stability of our nation’s biomedical research and public health agencies, including the NIH and FDA.
Joining the Rare Disease Congressional Caucus if they aren’t already — this caucus is a forum for Members of Congress to voice constituent concerns, collaborate on ideas, facilitate conversations between the medical and patient community, and build support for legislation that will improve the lives of people living with rare diseases.
Upcoming Advocacy Opportunities
Rare Across America: Through this program, you will have the opportunity to meet with your Members of Congress at their in-district offices or virtually and educate them on the issues that are most important to the rare disease community by sharing your story. Prep webinars occur in July, and Hill Meetings will be scheduled between August 4 and 15. Registration is open now through July 11.
Advocacy Session at SciFam: If you are attending SciFam this August, be sure to check out the Advocacy Session on Sunday, August 3. Members of the CMD Advocacy Team will share about their latest work, current hot topics, and how you can get involved.
