Rachel AlvarezSep 4, 20211 min2021 SciFam Content Now Available on YouTubeThanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Terry SeluckySep 4, 20211 minCMD Young Adult Programming Now AvailableIf you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
Lani Knutson, Advocacy Team LeaderSep 4, 20212 minFive-Minute Advocacy UpdateWant to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...
Cure CMDSep 4, 20212 minThe Benefits of Legacy GivingEveryone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Terry SeluckySep 4, 20211 minCaught Up on the Latest KSSK Episodes?Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
Cure CMDMay 1, 20212 minSciFam 2021 is Around the CornerAn all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Cure CMDMay 1, 20211 minCDC’s Milestone TrackerRecord Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...
Lani Knutson, Advocacy Team LeaderFeb 3, 20211 minMaking Respiratory Muscle Training Fun? Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...
Rachel AlvarezOct 23, 20202 minNew & Improved CMDIR Now Live!The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Mindy RobertsJul 7, 20201 minCMD Virtual Happy HourThe most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
Robin SwallowJul 7, 20201 minPeer to Peer Conversations: Connecting CMD to CMDDo you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
Cure CMDMay 2, 20201 minQuick News For YouHead’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Cure CMDMay 2, 20201 minCure CMD Support During COVID-19Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
Sarah FoyeMar 11, 20206 minCollege SearchAJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
Rachel GaffneyMar 6, 20202 minDisability Benefits with Muscular DystrophyHow to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
Rachel AlvarezFeb 10, 20204 minUnderstanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part SeriesPart 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! We’ve covered the history of drug...
Rachel AlvarezFeb 8, 20209 minUnderstanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part SeriesPart 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel AlvarezFeb 7, 20206 minUnderstanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part SeriesPart 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
Rachel AlvarezFeb 6, 20204 minUnderstanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part SeriesPart 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
Terry SeluckyJan 1, 20201 minCMD Mobile App is Live!Cure CMD has led the design and release of a comprehensive mobile app focused on Congenital Muscular Dystrophy (CMD) -- designed by the...