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    2021 SciFam Content Now Available on YouTube
    Rachel Alvarez
    • Sep 4, 2021
    • 1 min

    2021 SciFam Content Now Available on YouTube

    Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
    CMD Young Adult Programming Now Available
    Terry Selucky
    • Sep 4, 2021
    • 1 min

    CMD Young Adult Programming Now Available

    If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
    Five-Minute Advocacy Update
    Lani Knutson, Advocacy Team Leader
    • Sep 4, 2021
    • 2 min

    Five-Minute Advocacy Update

    Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...
    The Benefits of Legacy Giving
    Cure CMD
    • Sep 4, 2021
    • 2 min

    The Benefits of Legacy Giving

    Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
    Caught Up on the Latest KSSK Episodes?
    Terry Selucky
    • Sep 4, 2021
    • 1 min

    Caught Up on the Latest KSSK Episodes?

    Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
    SciFam 2021 is Around the Corner
    Cure CMD
    • May 1, 2021
    • 2 min

    SciFam 2021 is Around the Corner

    An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
    CDC’s Milestone Tracker
    Cure CMD
    • May 1, 2021
    • 1 min

    CDC’s Milestone Tracker

    Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...
    Making Respiratory Muscle Training Fun?
    Lani Knutson, Advocacy Team Leader
    • Feb 3, 2021
    • 1 min

    Making Respiratory Muscle Training Fun?

    Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...
    New & Improved CMDIR Now Live!
    Rachel Alvarez
    • Oct 23, 2020
    • 2 min

    New & Improved CMDIR Now Live!

    The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
    CMD Virtual Happy Hour
    Mindy Roberts
    • Jul 7, 2020
    • 1 min

    CMD Virtual Happy Hour

    The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
    Peer to Peer Conversations: Connecting CMD to CMD
    Robin Swallow
    • Jul 7, 2020
    • 1 min

    Peer to Peer Conversations: Connecting CMD to CMD

    Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
    Quick News For You
    Cure CMD
    • May 2, 2020
    • 1 min

    Quick News For You

    Head’s Up in Your Community What’s your Communication Style?  Cure CMD wants to know more about how you like to engage with us. Will you...
    Cure CMD Support During COVID-19
    Cure CMD
    • May 2, 2020
    • 1 min

    Cure CMD Support During COVID-19

    Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
    College Search
    Sarah Foye
    • Mar 11, 2020
    • 6 min

    College Search

    AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
    Disability Benefits with Muscular Dystrophy
    Rachel Gaffney
    • Mar 6, 2020
    • 2 min

    Disability Benefits with Muscular Dystrophy

    How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
    Rachel Alvarez
    • Feb 10, 2020
    • 4 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

    Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! We’ve covered the history of drug...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 8, 2020
    • 9 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 7, 2020
    • 6 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
    Rachel Alvarez
    • Feb 6, 2020
    • 4 min

    Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

    Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
    CMD Mobile App is Live!
    Terry Selucky
    • Jan 1, 2020
    • 1 min

    CMD Mobile App is Live!

    Cure CMD has led the design and release of a comprehensive mobile app focused on Congenital Muscular Dystrophy (CMD) -- designed by the...

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