Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
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Cure CMD
- Dec 3, 2023
- 5 min
2023 Inclusive Product Guide
A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the
Rachel Alvarez
- Sep 3, 2021
- 1 min
2021 SciFam Content Now Available on YouTube
Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Terry Selucky
- Sep 3, 2021
- 1 min
CMD Young Adult Programming Now Available
If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
Lani Knutson, Advocacy Team Leader
- Sep 3, 2021
- 2 min
Five-Minute Advocacy Update
Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...
Cure CMD
- Sep 3, 2021
- 2 min
The Benefits of Legacy Giving
Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Terry Selucky
- Sep 3, 2021
- 1 min
Caught Up on the Latest KSSK Episodes?
Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
Cure CMD
- Apr 30, 2021
- 2 min
SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Cure CMD
- Apr 30, 2021
- 1 min
CDC’s Milestone Tracker
Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...
Lani Knutson, Advocacy Team Leader
- Feb 3, 2021
- 1 min
Making Respiratory Muscle Training Fun?
Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...
Rachel Alvarez
- Oct 23, 2020
- 2 min
New & Improved CMDIR Now Live!
The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Mindy Roberts
- Jul 6, 2020
- 1 min
CMD Virtual Happy Hour
The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
Robin Swallow
- Jul 6, 2020
- 1 min
Peer to Peer Conversations: Connecting CMD to CMD
Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
Cure CMD
- May 2, 2020
- 1 min
Quick News For You
Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Cure CMD
- May 2, 2020
- 1 min
Cure CMD Support During COVID-19
Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
Sarah Foye
- Mar 11, 2020
- 6 min
College Search
AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
Rachel Gaffney
- Mar 6, 2020
- 2 min
Disability Benefits with Muscular Dystrophy
How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
Rachel Alvarez
- Feb 10, 2020
- 4 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...
Rachel Alvarez
- Feb 8, 2020
- 9 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
- Feb 7, 2020
- 6 min
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
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