We're thrilled to share that after several years following Cure CMD's submission to the Social Security Administration requesting the addition of LMNA-CMD to the Compassionate Allowance List, this CMD subtype is now included. The CAL list is SSA's way of fast-tracking help for people with the most severe medical diagnoses. Conditions on this list are considered serious enough to qualify for disability benefits and your application will be moved to the front of the line. Speci

Over 340 attendees gathered in Philadelphia for the 2025 Scientific & Family Conference, uniting families, clinicians, and researchers to share stories, advance care, and spark new collaborations. Highlights included 60 sessions, Kids Camp, young adult meetups, and the Scientific Symposium.

In honor of Mother’s Day 2025, Cure CMD asked five incredible mothers to reflect on caregiving, resilience, and the unexpected joys of...

LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...

A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...

Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...

Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...

Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...

The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...

The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...

Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...

Head’s Up in Your Community What’s your Communication Style?  Cure CMD wants to know more about how you like to engage with us. Will you...

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...

AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...

How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...