top of page
Donate
Newly Diagnosed
Newsletter
Learn
CMD Overview
Collagen 6
Dystroglycanopathy
LAMA2
LMNA
SELENON
Other CMDs
Care
KSSK Pulmonary Web Series
COVID-19 Resources
Care Guidelines
Sedation
Breathing
Cardiac
Hypoglycemia
Orthopedic
Research
2023 Research Roundtable
Research Strategy
Funding Portfolio
Resources for Scientists
Scientific Publications
Participate in Research
About
Mission & Impact
Our Team
Scientific Advisory Board
Advocacy Partners
Inclusivity Statement
Contact Us
Community
Newly Diagnosed?
Blog
Community Resources
Happy Hour
Legislative Advocacy
Mobile App
Peer Match & Mentorship
TikTok Video Initiative
Giving
Donate Now
Charitable Giving
Cure CMD Shop
More
Use tab to navigate through the menu items.
Profile
Join date: Mar 11, 2020
Posts
Mar 11, 2020
∙
6 min
College Search
AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
122
0
Sarah Foye
Writer
0
Followers
0
Following
Follow
Following icon
More actions
Profile
Blog Posts
Blog Comments
Blog Likes
bottom of page