CMD Advocates gathered in Washington, DC to honor, celebrate & champion for those living with rare disease.

The Cure CMD Legislative Advocacy team, along with our advocacy partners, continue to actively monitor developments and will provide updates

Cure CMD Receives 2024 MDA Advocacy Collaboration Grant

Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.

CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.

One of the most important ways you can advocate is to vote.

Join a newly forming council to help direct legislative priorities for the CMD community.

I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.

Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.

LAKEWOOD, CA — February 1, 2024 — Cure CMD is excited to be one of the seven recipient organizations of the Muscular Dystrophy...

Two recent sporting events supporting CMD awareness and community.

This year, the MDBR's Team Cure CMD raised $140k for research.

The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital...

By September 30, 2023, Congress must reauthorize the Federal Aviation Act (FAA). Changes can be made when an act is reauthorized, and advoca

Cure CMD's film, The Tenacity of Hope, features the raw and real experiences of those living with congenital muscular dystrophy.

Telehealth services have been critical to maintaining safe and consistent access to health care for patients with rare diseases such as...

Executive Director Rachel Alvarez shares a deep dive into her history as a rare disease patient, and what it means to lead Cure CMD.

Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...

Ohioans have been focused on protecting their family from the COVID crisis. But that is not the only public health crisis facing...

Use the template here to urge your Congressperson to support it! In 1983, the U.S. Congress passed The Orphan Drug Act, a law that...