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Join date: Mar 12, 2020
Posts
Apr 4, 2022
∙
1 min
Two-Minute Advocacy: Ensuring Telehealth Coverage
Telehealth services have been critical to maintaining safe and consistent access to health care for patients with rare diseases such as...
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Feb 28, 2022
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1 min
So You’re Telling Me There’s A Chance
Happy Rare Disease Day! Started in 2008, Rare Disease Day is an international event focused on bringing awareness to the more than 7,000...
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Oct 18, 2021
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4 min
Adrenaline Hangover
When Michael woke up with a fever and sore throat last Monday, I assumed it was strep throat. This kid can get strep just by thinking...
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Lani Knutson, Advocacy Team Leader
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