Advocacy Alert: Recent Changes at HHS Could Threaten CMD Research

Lani Knutson
Apr 8
1 min read

Updated: Apr 30

Your Voice Matters text with Call to Action — **Click the button at the bottom of the page to mail your representative now!**

On April 1, the U.S. Department of Health and Human Services (HHS) made substantial job cuts across federal health agencies, including the FDA, CDC, and NIH. These institutions are crucial to medical research and healthcare advancements, particularly for rare diseases like Congenital Muscular Dystrophy.

At Cure CMD, we're deeply concerned about how these cuts could impact ongoing CMD research, especially the critical work at the Neuromuscular and Neurogenetic Disorders of Childhood Section (NINDS) at NIH. This team’s efforts have been pivotal in driving advancements that benefit the CMD community.

Your Story is Powerful—Make Your Voice Heard

We need your help to protect CMD research and healthcare. Contact your representatives in Congress today to share your concerns. Adding your personal experience can significantly impact decision-makers.

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