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Rare Disease and CMD on The Hill
Cure CMD joined rare disease advocates in Washington, DC for Rare Disease Week 2026, meeting with lawmakers to raise awareness of congenital muscular dystrophy and the urgent need for research support.
James Immekus
5 days ago


CMD Moms Share Their Journeys This Mother’s Day
In honor of Mother’s Day 2025, Cure CMD asked five incredible mothers to reflect on caregiving, resilience, and the unexpected joys of...
James Immekus
May 1, 2025


Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
Kelly Berger
Feb 2, 2024
Creating pathways to LGMD genetic diagnosis: Spotlight on LGMD Grant Award recipient Cure CMD
Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...
Cure CMD
Feb 7, 2023


2021 SciFam Content Now Available on YouTube
Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Rachel Alvarez
Sep 3, 2021


CMD Young Adult Programming Now Available
If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
Terry Selucky
Sep 3, 2021


Caught Up on the Latest KSSK Episodes?
Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
Terry Selucky
Sep 3, 2021


SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Cure CMD
Apr 30, 2021


KSSK CMD Chats: Pulmonary Web Series World Premiere
Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...
Terry Selucky
Dec 17, 2020


Cure CMD Support During COVID-19
Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
Cure CMD
May 2, 2020


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1 , 2 , and 3 , we’ve covered...
Rachel Alvarez
Feb 10, 2020


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2 , we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
Feb 8, 2020


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
Rachel Alvarez
Feb 7, 2020


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
Rachel Alvarez
Feb 6, 2020


Significant Updates to LGMD Definitions and Nomenclature
Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...
Terry Selucky
Jan 17, 2020


Learn About Proactive Pulmonary Care with Our New Guide
Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing...
Rachel Alvarez
Jan 14, 2020
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