Cure CMD Support During COVID-19

Updated: May 3

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at Be sure to check for updates to this website during this constantly evolving situation.

We encourage individuals with CMD to have a back-up plan in place if a caregiver should test positive for COVID-19 and need to self isolate. Also, you should review your sick plan as this virus will have a similar effect as other respiratory illnesses.

If you or your loved ones have been exposed to COVID19 and are experiencing symptoms, please reach out to us at We have expert clinicians standing by to assist with guidance and recommendations for your local care team.

The CMD support community can also provide a source of strength and encouragement while we endure this period of social distancing and isolation. Find a full list of groups and how to join them here.

Also, Cure CMD has partnered with Living in the Light and other organizations to create the I Stay Home For Rare initiative. This initiative strives to raise awareness and provide disaster relief funding for those affected by rare diseases in this time of heightened need. Tell your story, donate, or apply for assistance at


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Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
extent allowable by law.  U.S. Federal Tax ID: 26-2640975