Attention CMD/LGMD Community Members:

If you or your loved ones have been exposed to COVID-19 and are experiencing symptoms, please reach out to us at info@curecmd.org. We have expert clinicians standing by to assist with guidance and recommendations for your local care team.

World Muscle Society Position and Advice

COVID-19 and People with Neuromuscular Disorders

Cure CMD COVID-19 Airway Clearance Guidance for Families and Clinicians
Should you suspect exposure to COVID-19, please share this document with your care team

Cure CMD COVID-19 Emergency Preparedness Planning Guide
The best time to plan for an emergency is before it happens. Review this guidance and make your plan.

Care Recommendations for Home‑Based Ventilation

As COVID-19 continues to affect our daily lives, it’s critical that we try to limit the spread of the virus as much as possible. This is especially applicable for patients who use noninvasive positive-pressure ventilation (NIPPV), mechanical airway clearance devices, or are supported by home ventilation for other chronic respiratory failure syndromes.

CDC Fact Sheets

Print resources to review and share with friends and family covering the most important facts you need to know about COVID-19.


Dr. Oscar H. Mayer Discusses COVID-19 and Neuromuscular Disorders 
Hosted by the RYR1 Foundation. Dr. Oscar H.Mayer is a pulmonologist and expert in neuromuscular respiratory care. Note: While this informational webinar was created for the RYR1 community, the advice shared is applicable to all persons with neuromuscular conditions. 


3 Tips: How to Get Through Flu Season
If you are positive for COVID-19 or any other virus, this informational webinar provides excellent guidance on proactive care.

The Speak Foundation

COVID-19 Resources for the Muscular Dystrophy Community
Includes an advocacy template and emergency preparedness checklist


 

Basic Precautions:

  • Social Distancing

  • Self-Isolation (be aware of professional caregivers' potential risk for exposure)

  • Frequent Hand Washing

  • Frequent Surface Disinfecting (don't forget doorknobs, drawer handles, light switches, mobile devices and keyboards!)


 

Cleaning & Disinfecting Recommendations from the CDC
To make a disinfectant solution, the CDC recommends mixing 4 teaspoons bleach per quart of water. 

Keep in mind that exposure to light and the age of a disinfectant solution can reduce its effectiveness. Mix what you need for one cleaning session only, and mix more when you next clean.



 

Connect with Us

Cure CMD

3217 E. Carson St. #1014
Lakewood, CA 90712 USA


+1-562-444-5656

General Inquiries:
Fundraising:

Science:

Research Grants:

About Us

Copyright © 2020 Cure CMD

Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
extent allowable by law.  U.S. Federal Tax ID: 26-2640975