Our Team

Rachel Alvarez

Executive Director

Secretary

Executive Committee

Gustavo
Dziewczapolski, PhD

Scientific Director

Terry Selucky

Grants and Public Relations
Fine Point Consulting

Doenica Palacio

Outreach & Development
Coordinator

Justin Park

Clinical Research
Associate

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Kara Ansotegui

Philanthropy and Donor Relations
Fine Point Consulting

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Luke Hoban

Editor in Chief

Liam Miller
Liam Miller

Lead Application Developer

Kelly Berger

Outreach & Engagement Coordinator

Robin Swallow

Curator
Volunteer

Charlene York

Curator
Volunteer

Lani Knutston

Advocacy Team Leader
Volunteer

Mindy Roberts

Volunteer

Patrick May

Chairman

Chief Financial Officer

Executive Committee

Mark Beare

Board Member

Eunice Kim

Vice Chairman

Executive Committee

Sara Bloomfield

Board Member

Rob Sunris

Board Member

Executive Committee

John Day, MD. PhD

Board Member

Medical Advisor

Carla Grosmann, MD

Board Member
Medical Advisor

Tim Knutson

Board Member
Development Advisor

Oscar H. Mayer, MD

Board Member
Medical Advisor

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Megan Meyer

Board Member
Co-host: Two Rare Mama Bears CMD Podcast

Jeff Rowbotttom

Board Member

Jodi Wolff, PhD

Board Member

Reghan Foley

Medical Advisor

National Institute of Health

Hemant Sawnani, MD

Medical Advisor
Cincinnati Children's Hospital Medical Center

John Pascoe

Medical Advisor
Cincinnati Children's Hospital Medical Center

Wayne Ogata

Scientific Advisor

Susan Lee-Miller

Million Dollar Bike Ride - 'Team Captain'
Volunteer

Diane Smith-Hoban

Million Dollar Bike Ride - 'Team Captain'
Volunteer

Mathea Manley

Co-host: Two Rare Mama Bears CMD Podcast, CMD Advocacy Team

Brendan Sullivan

Panelist, DOD Peer Reviewed Medical Research Program

It is with our utmost gratitude that we thank Dr. Anne Rutkowski,
co-founder, former chairman, and medical director, for her long standing service to the CMD Community. Anne's drive, leadership and vision are the foundation of Cure CMD and the Congenital Muscle Disease International Registry, and we owe so much of our success to her single-minded determination, to not only put congenital muscular dystrophy on the map, but to aggressively drive research toward treatments. We would also like to acknowledge the extraordinary sacrifice Anne's family made for more than eight years while Anne juggled being mom, physician and organization leader. Thank you Joe, Maia and Eli!

We would also like to acknowledge Richard Cloud in his outstanding contribution to Cure CMD as co-founder and former chairman.

Connect
with Us:

Cure CMD

3217 E. Carson St. #1014
Lakewood, CA 90712 USA
+1-562-444-5656

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Cure CMD is U.S. registered 501(c)(3) non-profit organization.
Donations are tax deductible to the extent allowable by law. 
U.S. Federal Tax ID: 26-2640975

Copyright © 2021 Cure CMD