top of page
Meet Our Team

Driving Cure CMD's mission wouldn't be possible without these dedicated individuals.

Click image for Bio

AlvarezR 2022-06a_edited.jpg

Rachel Alvarez

Executive Director

Board Member, Secretary

Gustavo Dziewczapolski.jpg

Gustavo Dziewczapolski, PhD

Scientific Director

Doenica Palacio_edited.jpg

Doenica Palacio

Outreach & Development Coordinator

Kelly Berger

Kelly Berger

Outreach & Engagement Coordinator

Lani Knutson_edited_edited.jpg

Lani Knutson

Legislative Advocacy
Team Leader

Avery

Avery Roberts

Outreach & Engagement Coordinator

Terry Selucky

Terry Selucky

Grants & PR Consultant

Fine Point Consulting

Charlene York_edited.jpg

Charlene York

Publication Librarian

Travel Coordinator

SunrisK

Kierra Sunris

Young Adult Content Creator

Hoban

Luke Hoban

Editor

Community Advisor

Miller

Liam Miller

App Developer

Community Advisor

SunrisR

Rob Sunris

Board Member

President

Day

John Day, MD PhD

Board Member

Scientific & Medical Advisor

Mayer

Oscar H. Mayer, MD

Board Member
Scientific & Medical Advisor

Wolff

Jodi Wolff, PhD

Board Member
Industry & Development Advisor

Kim

Eunice Kim

Board Member
Vice President

Hilary Dover_edited.jpg

Hilary Dover

Board Member
Incoming Treasurer

Headshot.png

Anthony Parisi

Board Member
Community Advisor

May

Patrick May

Board Member
Co-Founder, Outgoing Treasurer

Grosmann

Carla Grosmann, MD

Board Member
Medical Advisor
, Genetic Curator

RobertsM

Mindy Roberts

Board Member
HR & Governance Advisor

Beare

Mark Beare

Board Member

Executive Advisor

KnutsonT

Tim Knutson

Board Member

Development Advisor

Rowbottom

Jeff Rowbottom

Board Member
Development Advisor

Foley

A. Reghan Foley, MD

Scientific & Medical Advisor

Neuromuscular & Neurogenetic Diseases of Childhood
NINDS, NIH

Sawnani

Hemant Sawnani, MD

Medical Advisor
Cincinnati Children's Hospital Medical Center

Pascoe

John Pascoe, MD

Medical Advisor
Cincinnati Children's Hospital Medical Center

Ogata

Wayne Ogata

Scientific Advisor
Community Member

With Gratitude

Cure CMD is grateful for Dr. Anne Rutkowski, co-founder and prior medical director, for her long standing service to the CMD Community. Cure CMD's foundation was built on Anne's vision and single-minded determination to aggressively drive research toward treatments for the congenital muscular dystrophies. We would not be where we are today without her.

We would also like to thank Richard Cloud for his outstanding contributions as co-founder of Cure CMD, and for founding the first pharmaceutical company focused solely on identifying a treatment for CMD.

Anne Rutkowski.jpg
Richard Cloud.jpg
bottom of page