Our Team

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Rachel Alvarez

Executive Director

Board Secretary

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Gustavo
Dziewczapolski, PhD

Scientific Director

Doenica Palacio
Doenica Palacio

Outreach & Development
Coordinator

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Terry Selucky

Grants and Public Relations
Fine Point Consulting

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Kelly Berger

Outreach & Engagement Coordinator

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Luke Hoban

Editor in Chief

Liam Miller
Liam Miller

Lead Application Developer

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Robin Swallow

Volunteer Curator

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Charlene York

Volunteer Curator

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Lani Knutston

Advocacy Team Leader
Volunteer

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Rob Sunris

President
Finance Committee

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Eunice Kim

Vice President
Governance Committee

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Patrick May

Treasurer
Finance Committee

Mark Beare
Mark Beare

Executive Committee Member
Finance Committee
Board Member

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Oscar H. Mayer, MD

Board Member
Medical Advisor

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John Day, MD, PhD

Board Member

Medical Advisor

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Carla Grosmann, MD

Board Member

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Megan Meyer

Board Member
Governance Committee
Two Rare Mama Bears CMD Podcast

Reghan Foley
A. Reghan Foley, MD

Medical Advisor

National Institute of Health

Mindy Roberts
Mindy Roberts

Board Member
Governance Committee

Hemant Sawnani
Hemant Sawnani, MD

Medical Advisor
Cincinnati Children's Hospital 

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Jeff Rowbotttom

Board Member
Development Committee

John Pascoe
John Pascoe, MD

Medical Advisor
Cincinnati Children's Hospital

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Tim Knutson

Board Member
Development Committee
Development Advisor

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Jodi Wolff, PhD

Board Member
Development Committee

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Wayne Ogata

Scientific Advisor

Susan Lee-Miller
Susan Lee-Miller

Million Dollar Bike Ride
Team Captain

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Brendan Sullivan

Panelist, DOD Peer Reviewed Medical Research Program

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Diane Smith-Hoban

Million Dollar Bike Ride
Team Captain

Kierra Sunris
Kierra Sunris

Volunteer

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Mathea Manley

Two Rare Mama Bears CMD Podcast
CMD Advocacy Team

Avery Roberts
Avery Roberts

Volunteer

It is with our utmost gratitude that we thank Dr. Anne Rutkowski,
co-founder, former chairman, and medical director, for her long standing service to the CMD Community. Anne's drive, leadership and vision are the foundation of Cure CMD and the Congenital Muscle Disease International Registry, and we owe so much of our success to her single-minded determination, to not only put congenital muscular dystrophy on the map, but to aggressively drive research toward treatments. We would also like to acknowledge the extraordinary sacrifice Anne's family made for more than eight years while Anne juggled being mom, physician and organization leader. Thank you Joe, Maia and Eli!

We would also like to acknowledge Richard Cloud in his outstanding contribution to Cure CMD as co-founder and former chairman.

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