Our Team

Rachel Alvarez

Executive Director

Board Secretary

Gustavo
Dziewczapolski, PhD

Scientific Director

Doenica Palacio

Outreach & Development
Coordinator

Justin Park

Research Associate

Terry Selucky

Grants and Public Relations
Fine Point Consulting

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Liam Miller
Luke Hoban

Editor in Chief

Liam Miller

Lead Application Developer

Patrick May

President, Treasurer

Kelly Berger

Outreach & Engagement Coordinator

Robin Swallow

Volunteer Curator

Eunice Kim

Vice President

Charlene York

Volunteer Curator

Lani Knutston

Advocacy Team Leader
Volunteer

Rob Sunris

Executive Committee Member
Board Member

Mark Beare
John Day, MD, PhD

Executive Committee Member
Board Member

Board Member

Medical Advisor

Carla Grosmann, MD

Board Member

Tim Knutson

Board Member
Development Advisor

Oscar H. Mayer, MD

Board Member
Medical Advisor

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Megan Meyer

Board Member
Co-host: Two Rare Mama Bears CMD Podcast

Mindy Roberts

Board Member

Jeff Rowbotttom

Board Member

Jodi Wolff, PhD

Board Member

A. Reghan Foley, MD

Medical Advisor

National Institute of Health

Hemant Sawnani, MD

Medical Advisor
Cincinnati Children's Hospital Medical Center

John Pascoe, MD

Medical Advisor
Cincinnati Children's Hospital Medical Center

Wayne Ogata

Scientific Advisor

Susan Lee-Miller

Million Dollar Bike Ride
Team Captain

Diane Smith-Hoban

Million Dollar Bike Ride
Team Captain

Mathea Manley

Co-host: Two Rare Mama Bears CMD Podcast
CMD Advocacy Team

Brendan Sullivan

Panelist, DOD Peer Reviewed Medical Research Program

It is with our utmost gratitude that we thank Dr. Anne Rutkowski,
co-founder, former chairman, and medical director, for her long standing service to the CMD Community. Anne's drive, leadership and vision are the foundation of Cure CMD and the Congenital Muscle Disease International Registry, and we owe so much of our success to her single-minded determination, to not only put congenital muscular dystrophy on the map, but to aggressively drive research toward treatments. We would also like to acknowledge the extraordinary sacrifice Anne's family made for more than eight years while Anne juggled being mom, physician and organization leader. Thank you Joe, Maia and Eli!

We would also like to acknowledge Richard Cloud in his outstanding contribution to Cure CMD as co-founder and former chairman.

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