Newly​ Diagnosed?
Leading the Way to Treatments Begins With You
As someone affected by a muscle disorder, you have the power to help advance research to better understand CMD and find treatments.
Your voice and the data that you contribute can help identify and answer the questions that matter most.
Sometimes, learning from others who are the same journey can be not only a fantastic learning experience, but also a great source of comfort.
Join one more support groups and get real-time advice from affected individuals and parents about medical management, the effectiveness of medical devices and accessible vehicles, and how to cope with a rare diagnosis.
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