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Newly​ Diagnosed?

Leading the Way to Treatments Begins With You.
As someone affected by a muscle disorder, you have the power to help advance research to better understand CMD and find treatments.

Your voice and the data that you contribute can help identify and answer the questions that matter most.


Learning from others on the same journey can often be a useful learning experience as well as a great source of comfort. Join one more CMD support groups, hosted on Facebook, to connect and get advice from affected individuals, parents and caregivers about medical management, experiences with medical devices and accessible vehicles, how to cope with a rare diagnosis, and more.

In addition to the CMD Support Network, we have two additional programs to connect you with others in the community. CMD Happy Hour is a virtual monthly opportunity to chat live with others in the community. Our Peer-to-Peer Match Program connects affected individuals or family members 1:1 with another community member.

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