• Cure CMD on Facebook: Get the latest news and information about all things CMD! (https://www.facebook.com/CureCMD) • Cure CMD on Twitter (https://twitter.com/i/flow/login?redirect_after_login=%2FCureCMD) • Cure CMD on Instagram (https://www.instagram.com/curecmd/) • Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • Breathe with MD Support Group (https://www.facebook.com/groups/BreathewithMDSupportGroup) • Teens & Young Adults with Disabilities (https://www.facebook.com/groups/644205712411542/) • We Are More - WAM!: Dedicated to Changing the Way Society Views Young Adults with Disabilities (https://www.facebook.com/thewaminitiative) • College and Beyond: Life with Disabilities (https://www.facebook.com/groups/1794978214121839/) • Muscular Dystrophy Spousal Support Group (https://www.facebook.com/groups/1169732586435876/) • Myopathy Support Group (https://www.facebook.com/groups/128977355367) • Congenital Myopathy: We're All In This Together (https://www.facebook.com/groups/congenitalmyopathy)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • Ullrich CMD (Intermediate to Severe Collagen VI) Support Group (https://www.facebook.com/groups/col6cmd) • Bethlem Myopathy (Mild to Intermediate Collagen VI) Support group (https://www.facebook.com/groups/285978178093465/) • Bethlem Myopathy (Mild to Intermediate Collagen VI) Public Group (https://www.facebook.com/groups/60480497023/) • COL-VI German Wiki (https://col6.miraheze.org/wiki/Hauptseite)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • Collagen XII Support Group (https://www.facebook.com/groups/collagenxii) • COL12A1 Related Myopathy (https://www.facebook.com/groups/col12a1)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • Dystroglycanopathy with Cognitive Impairment (https://www.facebook.com/groups/curecmdaDG) • LGMD2i Support Group (https://www.facebook.com/groups/LGMD2I) • Parents and Family of LGMD2I (https://www.facebook.com/groups/1419906754916266) • WWS Support Group (https://www.facebook.com/groups/109842099061595) • MEB Support Group (https://www.facebook.com/groups/205268093263041) • LGMD2i Fund (https://www.lgmd2ifund.org/) • Cure LGMD2i Foundation (https://curelgmd2i.com/) • Congenital FKRP (https://www.facebook.com/groups/3126699760881401) • POMT1 - Congenital Muscular Dystrophy Connect (https://www.facebook.com/groups/752525979340178/)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • LAMA2-Merosin Deficient-MDC1A (Full Deficiency) (https://www.facebook.com/groups/lama2cmd/) • LAMA2-Merosin Deficient-MDC1A (Partial Deficiency) (https://www.facebook.com/groups/lama2cmdpartialdeficiency/)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • LMNA-CMD Support Group(https://www.facebook.com/groups/lmnacmd) • Laminopathies Support Group (mutations in the LMNA Gene)(https://www.facebook.com/groups/128043434571511/) • Emery-Dreifuss Support Group(https://www.facebook.com/groups/EmeryDreifuss/) • La Fundación Andrés Marcio (Andres Marcio Foundation, Spain)(http://www.fundacionandresmarcio.com/)

• Cure CMD Support Group for All Subtypes (https://www.facebook.com/groups/CureCMDSupport/) • SELENON Support Group (https://www.facebook.com/groups/SEPN1RSMD) • My Dystrophia: My journey with rigid-spine congenital muscular dystrophy (SEPN1) (https://www.mydystrophia.com/) • Our SEPN1 Life: A mother's blog about her two sons with SEPN1 (https://oursepn1life.wordpress.com/)

• Titin Related Muscle and Heart Disorders Discussion Group (https://www.facebook.com/groups/1471318463176054) • Titin Myopathy: All about Titin Protein, Titin Myopathy, Titinopathy, Titinopathies (https://titinmyopathy.com/)

• RYR1 Foundation on Facebook (https://www.facebook.com/ryr1foundation) • RYR1 Related Myopathy Community (https://www.facebook.com/ryr1myopathy) • The Minicore Project Support Group (https://www.facebook.com/groups/theminicoreproject/) • Central Core Disease & Minicore: a Place for Support, Learning & Friends (https://www.facebook.com/groups/243087794204/) • RYR1 Foundation (https://ryr1.org/)

• MTM/CNM Family Support & Discussion Group (https://www.facebook.com/groups/MtmCnmFamilySupportandDiscussion) • Lets Keep In Touch Connecting Families Affected By Myotubular Myopathy & CNM (https://www.facebook.com/groups/59692154015/?ref=group_browse_new) • Centronuclear Myopathy/CNM (https://www.facebook.com/groups/777453492334946/) • Joshua Frase Foundation supporting Centronuclear and Myotubular Myopathy (https://www.facebook.com/TheJoshuaCause/) • Miopatía Miotubular (MTM) – Miopatia centronuclear (CNM) Facebook (Espanol) (https://www.facebook.com/groups/940289522705370/) • Joshua Frase Foundation (MTM/CNM) (https://www.joshuafrase.org/) • MTM-CNM Family Connection (http://www.mtm-cnm.org/) • Where There’s A Will There’s A Cure Foundation for Myotubular Myopathy (https://www.will-cure.org/) • The Information Point for Centronuclear and Myotubular Myopathy (https://centronuclear.org.uk/) • The Myotubular Trust​ (https://myotubulartrust.org/)

• Partners: AFBS for Nemaline Myopathy (https://www.facebook.com/search/top/?q=Partners%3A%20AFBS%20for%20Nemaline%20Myopathy) • Congenital Nemaline Myopathy Community: We're All In This Together (https://www.facebook.com/groups/1206757622673721/) • A Foundation Building Strength for Nemaline Myopathy on Facebook (https://www.facebook.com/BuildingStrength/) • A Foundation Building Strength for Nemaline Myopathy (https://buildingstrength.org/)

• Congenital Myasthenic Syndrome Support Group (https://www.facebook.com/groups/24708253720/?fref=ts) • Congenital Myasthenic Facebook Community Page (https://www.facebook.com/CongenitalMyasthenicSyndrome?fref=ts) • Myasthenic Kids (https://myasthenickids.org/)