Question 1

General Resources

Accepted Answer

Cure CMD on Facebook: Get the latest news and information about all things CMD! 
Cure CMD on Twitter 
Cure CMD on Instagram 
Cure CMD Support Group for All Subtypes 
Breathe with MD Support Group 
Teens & Young Adults with Disabilities 
We Are More - WAM!: Dedicated to Changing the Way Society Views Young Adults with Disabilities 
College and Beyond: Life with Disabilities 
Muscular Dystrophy Spousal Support Group 
Myopathy Support Group 
Congenital Myopathy: We're All In This Together

Question 2

Collagen 6 - Ullrich CMD through Bethlem Myopathy

Accepted Answer

Cure CMD Support Group for All Subtypes 
Ullrich CMD (Intermediate to Severe Collagen VI) Support Group 
Bethlem Myopathy (Mild to Intermediate Collagen VI) Support group 
Bethlem Myopathy (Mild to Intermediate Collagen VI) Public Group 
COL-VI German Wiki

Question 3

Collagen 12

Accepted Answer

Cure CMD Support Group for All Subtypes 
Collagen XII Support Group 
COL12A1 Related Myopathy

Question 4

Dystroglycanopathies - (aDG-MD, Dystroglycanopathy, Walker-Warburg, Muscle-Eye-Brain, Fukuyama, LGMD2I, LGMD2K, LGMD2M, LGMD2N, LGMD2O)

Accepted Answer

Cure CMD Support Group for All Subtypes 
Dystroglycanopathy with Cognitive Impairment 
LGMD2i Support Group 
Parents and Family of LGMD2I 
WWS Support Group 
MEB Support Group 
LGMD2i Fund 
Cure LGMD2i Foundation 
Congenital FKRP 
POMT1 - Congenital Muscular Dystrophy Connect

Question 5

LAMA2 - Merosin Deficient/Merosin Negative

Accepted Answer

Cure CMD Support Group for All Subtypes 
LAMA2-Merosin Deficient-MDC1A (Full Deficiency) 
LAMA2-Merosin Deficient-MDC1A (Partial Deficiency)

Question 6

Laminopathies - LMNA-CMD (L-CMD, Lamin A/C), LGMD1B & EDMD

Accepted Answer

Cure CMD Support Group for All Subtypes 
LMNA-CMD Support Group
Laminopathies Support Group (mutations in the LMNA Gene)
Emery-Dreifuss Support Group
La Fundación Andrés Marcio (Andres Marcio Foundation, Spain)

Question 7

SELENON (SEPN1) - Rigid Spine Muscular Dystrophy/RSMD

Accepted Answer

Cure CMD Support Group for All Subtypes 
SELENON Support Group 
My Dystrophia: My journey with rigid-spine congenital muscular dystrophy (SEPN1) 
Our SEPN1 Life: A mother's blog about her two sons with SEPN1

Question 8

Titin Related Disorders

Accepted Answer

Titin Related Muscle and Heart Disorders Discussion Group 
Titin Myopathy: All about Titin Protein, Titin Myopathy, Titinopathy, Titinopathies

Question 9

RYR1 - Central Core, Multiminicore and Centronuclear Myopathy, Malignant Hyperthermia related to RYR1 mutations

Accepted Answer

RYR1 Foundation on Facebook 
RYR1 Related Myopathy Community 
The Minicore Project Support Group 
Central Core Disease & Minicore: a Place for Support, Learning & Friends 
RYR1 Foundation

Question 10

Centronuclear and Myotubular Myopathy

Accepted Answer

MTM/CNM Family Support & Discussion Group 
Lets Keep In Touch Connecting Families Affected By Myotubular Myopathy & CNM 
Centronuclear Myopathy/CNM 
Joshua Frase Foundation supporting Centronuclear and Myotubular Myopathy 
Miopatía Miotubular (MTM) – Miopatia centronuclear (CNM) Facebook  (Espanol) 
Joshua Frase Foundation (MTM/CNM) 
MTM-CNM Family Connection 
Where There’s A Will There’s A Cure Foundation for Myotubular Myopathy 
The Information Point for Centronuclear and Myotubular Myopathy 
The Myotubular Trust​

Question 11

Nemaline Myopathy

Accepted Answer

Partners: AFBS for Nemaline Myopathy 
Congenital Nemaline Myopathy Community: We're All In This Together 
A Foundation Building Strength for Nemaline Myopathy on Facebook 
A Foundation Building Strength for Nemaline Myopathy

Question 12

Congenital Myasthenic Syndrome

Accepted Answer

Congenital Myasthenic Syndrome Support Group 
Congenital Myasthenic Facebook Community Page 
Myasthenic Kids

Support Groups, Pages, and Websites by Subtype

General Resources

Collagen 6

Collagen 12

Dystroglycanopathies

LAMA2 (Merosin)

LMNA (Laminopathies)

SEPN1

Titin Related Disorders

RYR1

Centronuclear/Myotubular Myopathy

Nemaline Myopathy

Congenital Myasthenic Syndrome

General Resources

Collagen 6 - Ullrich CMD through Bethlem Myopathy

Collagen 12

Dystroglycanopathies - (aDG-MD, Dystroglycanopathy, Walker-Warburg, Muscle-Eye-Brain, Fukuyama, LGMD2I, LGMD2K, LGMD2M, LGMD2N, LGMD2O)

LAMA2 - Merosin Deficient/Merosin Negative

Laminopathies - LMNA-CMD (L-CMD, Lamin A/C), LGMD1B & EDMD

SELENON (SEPN1) - Rigid Spine Muscular Dystrophy/RSMD

Titin Related Disorders

RYR1 - Central Core, Multiminicore and Centronuclear Myopathy, Malignant Hyperthermia related to RYR1 mutations

Centronuclear and Myotubular Myopathy

Nemaline Myopathy

Congenital Myasthenic Syndrome