Support Groups, Pages, and Websites by Subtype
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Cure CMD on Facebook: Get the latest news and infromation about all things CMD!
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We Are More - WAM!: Dedicated to Changing the Way Society Views Young Adults with Disabilities
Full Spectrum of Collagen VI/Disorders from Ullrich CMD through Bethlem Myopathy
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Ullrich CMD (Intermediate to Severe Collagen VI) Support Group
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Bethlem Myopathy (Mild to Intermediate Collagen VI) Support group
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Bethlem Myopathy (Mild to Intermediate Collagen VI) Public Group
aDG-MD, Dystroglycanopathy, Walker-Warburg, Muscle-Eye-Brain, Fukuyama, LGMD2I, LGMD2K, LGMD2M, LGMD2N, LGMD2O
Merosin Deficient/Merosin Negative
Laminopathies
LMNA-CMD (L-CMD, Lamin A/C), LGMD1B & EDMD
Rigid Spine Muscular Dystrophy/RSMD
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My Dystrophia: My journey with rigid-spine congenital muscular dystrophy (SEPN1)
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Our SEPN1 Life: A mother's blog about her two sons with SEPN1
Central Core, Multiminicore and Centronuclear Myopathy, Malignant Hyperthermia related to RYR1 mutations
Centronuclear and Myotubular Myopathy
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Lets Keep In Touch Connecting Familes Affected By Myotubular Myopathy & CNM
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Joshua Frase Foundation supporting Centronuclear and Myotubular Myopathy
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Miopatía Miotubular (MTM) – Miopatia centronuclear (CNM) Facebook (Espanol)
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Where There’s A Will There’s A Cure Foundation for Myotubular Myopathy
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The Information Point for Centronuclear and Myotubular Myopathy
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Congenital Nemaline Myopathy Community: We're All In This Together
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A Foundation Building Strength for Nemaline Myopathy on Facebook
Congenital Myasthenic Syndrome
If you see a group or page missing from this list, please email us at info@curecmd.org