Our Mission
Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support of our community.
Our Values
Hopeful | Collaborative | Responsive
Proactive | Community-Led
As anyone with CMD knows, hope is tenacious
Join our mission to advance research
and support our community of affected individuals and families
Achievements
Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, industry, advocates, families, and generous supporters like you, we have made an incredible impact in the lives of those living with CMD:
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Provide funding for $4 million in research grants
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Launch two clinical trials and support natural history studies in all five subtypes
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Grow the Congenital Muscle Disease International Registry to more than 3,500 affected participants worldwide
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Host biennial Scientific & Family Conferences attended by more than 500 stakeholders
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Create more than 300 hours of videos content through live and pre-recorded webinars and in-person events to educate and support the affected community
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Expand community reach and engagement by 400% over the last five years
Looking Forward
As we look to the future, we are focused on a bold strategy:
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Continue to provide supportive content that is responsive to the affected community's needs
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Multiply scientific research grant awards to drive us closer to treatments
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Grow the scientific community by encouraging young scientists to focus their talents in CMD research
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Increase outreach efforts to identify the global population affected by congenital muscular dystrophy through our patient registry
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Ensure that all of our efforts continue to meet needs of the CMD community