Our Mission

Cure CMD’s mission is to advance research for treatments and a cure for the Congenital Muscular Dystrophies.
We will improve the lives of those living with CMD through engagement and support of our community.

Our History

Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with scientists, doctors, dedicated volunteers, involved families, and generous donors, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:

  • Launched two clinical trials 

  • Completed a five year natural history study with the NIH to identify clinical trial endpoints

  • Grew the Congenital Muscle Disease International Registry (CMDIR) to more than 2,600 registrants worldwide

  • Co-Funded over $2 million in research grants

2018 Annual Report

Looking Forward

As Cure CMD looks to the future, we are focused on a bold strategy:

  • Expanded outreach efforts to identify the global population affected by congenital muscular dystrophy

  • A new registry platform to better position the CMD community for clinical trial recruitment

  • New and expanded revenue streams, including grant application submissions, ensuring Cure CMD’s growth and stability for the future

  • Expanded Board of Directors, additional paid employees, and an increase in the volunteer base are essential to securing the future of Cure CMD

Cure CMD aims to bring six out of six CMD subtypes to clinical trial by 2025.
We hope you'll join us in advancing this cause.

with Us:

Cure CMD

3217 E. Carson St. #1014
Lakewood, CA 90712 USA

General Inquiries:


Research Grants:

About Us

Cure CMD is U.S. registered 501(c)(3) non-profit organization.
Donations are tax deductible to the extent allowable by law. 
U.S. Federal Tax ID: 26-2640975

Copyright © 2020 Cure CMD