Cure CMD’s mission is to advance research for treatments and a cure for the Congenital Muscular Dystrophies.
We will improve the lives of those living with CMD through engagement and support of our community.
Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with scientists, doctors, dedicated volunteers, involved families, and generous donors, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:
Launched two clinical trials
Completed a five year natural history study with the NIH to identify clinical trial endpoints
Grew the Congenital Muscle Disease International Registry (CMDIR) to more than 2,600 registrants worldwide
Co-Funded over $2 million in research grants
2018 Annual Report
As Cure CMD looks to the future, we are focused on a bold strategy:
Expanded outreach efforts to identify the global population affected by congenital muscular dystrophy
A new registry platform to better position the CMD community for clinical trial recruitment
New and expanded revenue streams, including grant application submissions, ensuring Cure CMD’s growth and stability for the future
Expanded Board of Directors, additional paid employees, and an increase in the volunteer base are essential to securing the future of Cure CMD