Our Mission

Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support of our community.

Our Values

Hopeful | Collaborative | Responsive
Proactive | Community-Led

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Organization Milestones

Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters like you, we have made a significant impact in the lives of those living with CMD:

Looking Forward

As we look to the future, we are focused on a bold strategy:

  • Continuing to provide supportive content that is responsive to the affected community's needs

  • Doubling our grant awards to drive research toward treatments

  • Growing the scientific community by encouraging young scientists to focus their talents in CMD research

  • Redoubling outreach efforts to identify the global population affected by congenital muscular dystrophy

  • Launching a new registry platform to better position the CMD community for clinical trial recruitment

  • Expanding our Board of Directors, staff, and volunteer base to ensure the future of our organization's commitment to the CMD community