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Organization Milestones

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Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters like you, we have made a significant impact in the lives of those living with CMD:

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• Provided funding for over $3 million in research grants

• Launched two clinical trials 

• Grew the Congenital Muscle Disease International Registry to more than 3,000 affected registrants worldwide

• Host a biennial Scientific & Family Conference with over 500 stakeholders in attendance

• Created more than 300 hours of videos content to educate and support advocacy

• Grown community engagement by 300% in the last three years

Looking Forward

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As we look to the future, we are focused on a bold strategy:

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• Continuing to provide supportive content that is responsive to the affected community's needs

• Doubling our grant awards to drive research toward treatments

• Growing the scientific community by encouraging young scientists to focus their talents in CMD research

• Redoubling outreach efforts to identify the global population affected by congenital muscular dystrophy

• Launching a new registry platform to better position the CMD community for clinical trial recruitment

• Expanding our Board of Directors, staff, and volunteer base to ensure the future of our organization's commitment to the CMD community