Achievements

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Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters like you, we have made a significant impact in the lives of those living with CMD:

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• Provide funding for over $3 million in research grants

• Launch two clinical trials and support natural history studies in all five subtypes

• Grow the Congenital Muscle Disease International Registry to more than 3,000 affected participants worldwide

• Host a biennial Scientific & Family Conference with over 500 stakeholders in attendance

• Create more than 300 hours of videos content through live and pre-recorded webinars and in-person events to educate and support the affected community

• Grow community engagement by 300% in the last three years

Looking Forward

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As we look to the future, we are focused on a bold strategy:

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• Continue providing supportive content that is responsive to the affected community's needs

• Double our grant awards to drive research toward treatments

• Grow the scientific community by encouraging young scientists to focus their talents in CMD research

• Redouble outreach efforts to identify the global population affected by congenital muscular dystrophy

• Launch a new registry platform to better position the CMD community for research and trial recruitment

• Expand our Board of Directors, staff, and volunteer base to ensure our organization's commitment to the CMD community