Our Mission

Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support of our community.

Our History

Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:

  • Launched two clinical trials 

  • Completed a five year natural history study with the NIH to identify clinical trial endpoints

  • Grew the Congenital Muscle Disease International Registry (CMDIR) to more than 3,000 registrants worldwide

  • Provided funding for over $3 million in research grants

Our Impact in 2020

2016-2020 Financials

Looking Forward

As Cure CMD looks to the future, we are focused on a bold strategy:

  • Expanded outreach efforts to identify the global population affected by congenital muscular dystrophy

  • A new registry platform to better position the CMD community for clinical trial recruitment

  • New and expanded revenue streams, including grant application submissions, ensuring Cure CMD’s growth and stability for the future

  • Expanded Board of Directors, staff, and growth in our volunteer base are essential to securing the future of Cure CMD