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Our Mission
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Cure CMD’s mission is to advance research for treatments and a cure for the Congenital Muscular Dystrophies.
We will improve the lives of those living with CMD through engagement and support of our community.
Our History
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Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:
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Launched two clinical trials
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Completed a five year natural history study with the NIH to identify clinical trial endpoints
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Grew the Congenital Muscle Disease International Registry (CMDIR) to more than 3,000 registrants worldwide
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Co-Funded over $3 million in research grants
2018 Annual Report​
Looking Forward
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As Cure CMD looks to the future, we are focused on a bold strategy:
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Expanded outreach efforts to identify the global population affected by congenital muscular dystrophy
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A new registry platform to better position the CMD community for clinical trial recruitment
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New and expanded revenue streams, including grant application submissions, ensuring Cure CMD’s growth and stability for the future
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Expanded Board of Directors, additional paid employees, and an increase in the volunteer base are essential to securing the future of Cure CMD