Our Mission
Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and improve the lives of those living with CMD through engagement and support of our community.
Our Values
Hopeful | Collaborative | Responsive
Proactive | Community-Led
As anyone with CMD knows, hope is tenacious
Join our mission to advance research
and support our community of affected individuals and families
Achievements
Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters like you, we have made a significant impact in the lives of those living with CMD:
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Provided funding for over $4 million in research grants
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Launched two clinical trials and support natural history studies in all five subtypes
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Grown the Congenital Muscle Disease International Registry to more than 3,500 affected participants worldwide
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Hosted biennial Scientific & Family Conferences attended by more than 500 stakeholders
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Created more than 300 hours of videos content through live and pre-recorded webinars and in-person events to educate and support the affected community
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Expanded community reach and engagement by 400%
Looking Forward
As we look to the future, we are focused on a bold strategy:
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Continue providing supportive content responsive to the affected community
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Double research grant awards to drive us closer to treatments
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Grow the scientific community by encouraging young scientists to focus their talents in CMD research
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Redouble outreach efforts to identify the global population affected by congenital muscular dystrophy through our patient registry
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Expand Board of Directors, staff, and volunteer base to ensure our organization's commitment to the CMD community