Before and After I was Diagnosed: One Breath at a Time



- Apr 5, 2022
- 2 min
FDA Patient-Focused Drug Development Initiative: Affected Community Testimonials at 2022 SciFam

- Apr 4, 2022
- 2 min
Cure CMD Awarded Additional Year of Funding through the Rare As One Network


- Feb 28, 2022
- 1 min
So You’re Telling Me There’s A Chance

- Feb 25, 2022
- 4 min
Annie Live!: My First-Hand Experience in a Television Production


- Feb 24, 2022
- 11 min
Rare Disease Day Reflections: My Rare Disease Journey


- Oct 18, 2021
- 4 min
Adrenaline Hangover

- Sep 14, 2021
- 3 min
How Much? How Little?


- Sep 3, 2021
- 1 min
2021 SciFam Content Now Available on YouTube

- Sep 3, 2021
- 1 min
Calling All Artists: Cure CMD’s Creative Contest for Affected Individuals


- Sep 3, 2021
- 1 min
CMD Young Adult Programming Now Available


- Sep 3, 2021
- 2 min
Five-Minute Advocacy Update

- Sep 3, 2021
- 1 min
Liam: A Rare College Experience Featured On The Disorder Channel


- Sep 3, 2021
- 2 min
The Benefits of Legacy Giving


- Sep 3, 2021
- 3 min
Co-pay Assistance Programs Essential to Patients and Caregivers


- Aug 31, 2021
- 2 min
Congratulations Dr. Erdmann!

- Aug 28, 2021
- 3 min
The Asterisk


- May 20, 2021
- 2 min
Looking Forward to SciFam


- May 15, 2021
- 3 min
I Am No Sob Story


- May 11, 2021
- 3 min
That Defining Moment by Simon Cantos