Cure CMD’s Kelly Berger Spotlighted by University of Kentucky for Her Advocacy in Rare Disease and Disability Communities

Kelly Berger, Cure CMD Community Engagement Manager

Kelly Berger, Cure CMD’s Community Engagement Manager and tireless advocate for the rare disease and disability communities, was recently featured by her Alma mater's campus magazine, the University of Kentucky’s UKNow. As a person living with congenital muscular dystrophy (CMD), Kelly brings both professional expertise and lived experience to her advocacy efforts.

Championing Change and Empowerment

In her interview, Kelly reflects on her journey navigating education, accessibility, and leadership roles while living with CMD. She emphasizes the importance of community support, accessible infrastructure, systemic policy changes, equitable opportunities, and public awareness for rare diseases and disabilities. Her message is clear: authentic representation and systemic change are crucial to building a more inclusive world.

Kelly's Role at Cure CMD

At Cure CMD, Kelly plays a vital role in fostering community connections and mentoring young adults living with congenital muscular dystrophies. Her firsthand understanding of the challenges faced by the community fuels her commitment to empowering individuals, promoting awareness, and building strong support networks globally

Read More

We invite you to read the full magazine feature (pg16-19) to learn more about Kelly’s incredible journey and her unwavering dedication to advocacy work.