top of page
Search
CMD Moms Share Their Journeys This Mother’s Day
In honor of Mother’s Day 2025, Cure CMD asked five incredible mothers to reflect on caregiving, resilience, and the unexpected joys of...
James Immekus
May 17 min read
Cure CMD’s Kelly Berger Spotlighted by University of Kentucky for Her Advocacy in Rare Disease and Disability Communities
Cure CMD’s Community Engagement Manager and tireless advocate for the rare disease and disability communities, was recently featured by her Alma mater's campus magazine, the University of Kentucky’s UKNow.
James Immekus
Apr 301 min read
2025 Rare Disease Week Recap
CMD Advocates gathered in Washington, DC to honor, celebrate & champion for those living with rare disease.
Kelly Berger & Avery Roberts
Mar 113 min read
A Message from Cure CMD’s Advocacy Team Lead
The Cure CMD Legislative Advocacy team, along with our advocacy partners, continue to actively monitor developments and will provide updates
Lani Knutson
Feb 121 min read
Cure CMD Seeks Advocacy Advisory Council Members
Join a newly forming council to help direct legislative priorities for the CMD community.
Lani Knutson, Advocacy Team Leader
Jul 1, 20242 min read
Youth Advocate Attends First Virtual Hill Day
I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.
Kassidy C.
Jun 27, 20243 min read
2024 Rare Disease Week Recap
Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.
Lani Knutson, Advocacy Team Leader
Mar 20, 20245 min read
bottom of page