Why does advocacy matter for people living with congenital muscular dystrophy? Cure CMD’s Avery Roberts shares what she learned from national rare disease advocacy conversations and why affected individuals and families deserve a meaningful role in shaping research, treatment, care, and policy.

Cure CMD’s 2026 Virtual CMD Advocacy Event brought together advocates to share their stories, meet with congressional offices, and raise awareness of issues affecting the CMD community.

Learn how the new Medicaid work requirement rule could impact individuals living with congenital muscular dystrophy (CMD), what exemptions may apply, and how your voice can protect access to essential services.