Accessibility

Avery Roberts representing the congenital muscular dystrophy community at a rare disease advocacy event

Why Advocacy Matters: Bringing the CMD Community’s Voice to the Table

Why does advocacy matter for people living with congenital muscular dystrophy? Cure CMD’s Avery Roberts shares what she learned from national rare disease advocacy conversations and why affected individuals and families deserve a meaningful role in shaping research, treatment, care, and policy.

Avery Roberts

Oct 15

A group of hikers use straps to pull an adaptive off-road wheelchair up a steep, shaded dirt trail on a forested hillside. The woman in the wheelchair smiles at a companion walking beside her while several others ahead lean into the incline, hauling the chair uphill.

Community Member’s Accessible Camino Pilgrimage Recap

CMD community member, Angela Maccarrone shares her 2026 I’ll Push You Final Accessible Camino journey conquering the The Camino de Santiago pilgrimage.

Angela Maccarrone

Sep 15

Cure CMD's Kelly Berger Becomes Certified ADA Coordinator, Offering Accessibility Inquiries

Cure CMD’s Community Engagement Manager, Kelly Berger, completes the Americans with Disabilities Act (ADA) Coordinator Certification Program (ADACC), and is offering the CMD community accessibility consulting services.

Kelly Berger

Aug 26