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New Medicaid Work Requirement Rule: What it Means for the CMD Community
Learn how the new Medicaid work requirement rule could impact individuals living with congenital muscular dystrophy (CMD), what exemptions may apply, and how your voice can protect access to essential services.
Avery Roberts
Jun 9


Community Member & PhD Student Turns Setbacks into Research Opportunity
Beginning a PhD is rarely straightforward. Beginning one just as the world shuts down adds an entirely new dimension to adaptability. For George Mason University biosciences PhD student Matthew Lefkowitz, that quality would come to define his doctoral journey.
Laura Powers
May 14


Finding Our Voice: Testifying for Medicaid and the Power of Sharing Our Story
Ashley Burkman shares how testifying for Medicaid highlighted the daily reality of CMD caregiving and how honest storytelling can drive advocacy and change.
Ashley Burkman
Apr 7


Community Member Selected for Accessible Camino Pilgrimage
It Started With an Idea I’m Angela, and I live with SELENON-Related Myopathy. As a member of the CMD community, I have had the privilege of being connected to others living with similar neuromuscular diseases. Being part of this community has continually reminded me that while CMD can feel isolating at times, we are never truly alone. In 2017, I attended an MDA-sponsored premiere of I’ll Push You , a documentary that follows two best friends, Justin and Patrick. Justin has a
Angela Maccarrone
Feb 19
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