top of page
Search


Researchers Discover Link Between Protein and Synapse Development in Dystroglycanopathy
Researchers at the Wright Lab at OHSU’s Vollum Institute have discovered that the protein Dystroglycan is vital for brain connectivity, revealing a key neurological role in Dystroglycanopathy and opening new pathways for CMD research and treatment.
Angela Yeager
Jul 81 min read


CMD Advocacy Updates: Urge Your Senators to Reject H.R.1 Now
Learn how Cure CMD is fighting harmful legislation like the OBBBA, NIH funding cuts, and threats to Medicaid through strategic advocacy and rare disease policy action. Discover how you can help protect access to care, advance research, and make your voice heard.
Lani Knutson
Jun 252 min read
bottom of page