Why does advocacy matter for people living with congenital muscular dystrophy? Cure CMD’s Avery Roberts shares what she learned from national rare disease advocacy conversations and why affected individuals and families deserve a meaningful role in shaping research, treatment, care, and policy.

Learn how Cure CMD is fighting harmful legislation like the OBBBA, NIH funding cuts, and threats to Medicaid through strategic advocacy and rare disease policy action. Discover how you can help protect access to care, advance research, and make your voice heard.