Cure CMD joined rare disease advocates in Washington, DC for Rare Disease Week 2026, meeting with lawmakers to raise awareness of congenital muscular dystrophy and the urgent need for research support.

Learn how Cure CMD is fighting harmful legislation like the OBBBA, NIH funding cuts, and threats to Medicaid through strategic advocacy and rare disease policy action. Discover how you can help protect access to care, advance research, and make your voice heard.

Cure CMD Receives 2024 MDA Advocacy Collaboration Grant

Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.

One of the most important ways you can advocate is to vote.