This post highlights Boston University’s recent feature on Justin Moy, written by Molly Callahan for The Brink. Read the full article here. Photo credits to Jackie Ricciardi.
Growing up with a progressive muscle disorder, Justin Moy (lives with LAMA2-RD) faced the realities of a condition without treatments—but instead of waiting for solutions, he chose to pursue them himself.
In his latest interview with Boston University, where he is currently pursuing his Ph.D. candidacy in bioinformatics, Justin is focused on understanding how LAMA2-RD affects muscle cells at the molecular level. His research could lay the foundation for future therapies, including gene therapy approaches that aim to correct the underlying genetic mutation responsible for LAMA2-RD.
Combining research with lived experience is a hallmark belief of Cure CMD, and Justin and his work embody this principle. His dedication to advancing treatments for LAMA2-RD aligns with Cure CMD’s mission to drive research, empower families with resources, and bring experts together to improve outcomes for those living with congenital muscular dystrophies.
Learn more about Justin’s journey and research in Boston University's latest article from The Brink here.