How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...

Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...

Check out Part 2 of Paul's 2-part series From a young age, I have always had an undying love for sports. My earliest sports memories are...

The COVID-19 pandemic has been brutal, especially in the United States. Both the actual impact of the virus itself and the mental strain...

If you are a parent of a child with special needs, a disability, or a rare disease, you’ve probably heard the poem Welcome to Holland. By...

The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...

Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...

My daughter Lumina Jubilee was diagnosed with Walker-Warburg Syndrome--the most severe form of congenital muscular dystrophy--in utero at...

This week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...

Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...

Head’s Up in Your Community What’s your Communication Style?  Cure CMD wants to know more about how you like to engage with us. Will you...

The Cure CMD Advocacy Team was represented by 13 advocates at Rare Disease Week in Washington, D.C. during the last week of February....

The transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...

AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...

How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...

Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...

Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing...

When this decade began, Cure CMD was a fledgling organization, less than two years old. For 14-year-old me, the highlight of those early...

Cure CMD has led the design and release of a comprehensive mobile app focused on Congenital Muscular Dystrophy (CMD) -- designed by the...

If you plan to attend, your next steps are: Read Rob Sunris' blog post on last year's Rare Disease Week. Attend the Information Webinar...