Cure CMD Volunteer Charlene York Honored as NORD Rare Impact Awardee

Updated: Oct 28


Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we can continue to provide the programming do!


Speaking of… we want to give a very special shout-out to long-time Cure CMD volunteer, Charlene York, who received a Rare Impact Award from the National Organization for Rare Disorders (NORD) on October 9th! Charlene is a Volunteer Ambassador for the Ohio Rare Action Network and has been a volunteer with Cure CMD almost since its inception. Since then, she’s given countless hours to help curate the CMDIR, to create and curate the publication library, to manage travel for all clinical trials and conferences, to vet funding opportunities for Cure CMD, and more.

Charlene -- we are so grateful to have you as part of our community. Thank you for everything you do, and for inspiring us to work as hard as you do. Next time we see each other, the cosmos are on us!

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