Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...

After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...

Head’s Up in Your Community What’s your Communication Style?  Cure CMD wants to know more about how you like to engage with us. Will you...

The Cure CMD Advocacy Team was represented by 13 advocates at Rare Disease Week in Washington, D.C. during the last week of February....

With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...

The transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...

AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...

How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...

In the Congenital Muscular Dystrophy (CMD) world, we know our disease is rare. And if you look at the numbers in each subtype, the groups...

Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1 , 2 , and 3 , we’ve covered...