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Academic Advocacy
The transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...
Kierra Sunris
Apr 7, 20204 min read


College Search
AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
Sarah Foye
Mar 11, 20206 min read


Disability Benefits with Muscular Dystrophy
How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
Rachel Gaffney
Mar 6, 20202 min read


2020 Rare Disease Day: Show Your Stripes
In the Congenital Muscular Dystrophy (CMD) world, we know our disease is rare. And if you look at the numbers in each subtype, the groups...
Lani Knutson, Advocacy Team Leader
Feb 15, 20202 min read


Plan a Local CMD-Focused Event
Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...
Terry Selucky
Feb 14, 20202 min read


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1 , 2 , and 3 , we’ve covered...
Rachel Alvarez
Feb 10, 20204 min read


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2 , we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
Feb 8, 20209 min read


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
Rachel Alvarez
Feb 7, 20206 min read


Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...
Rachel Alvarez
Feb 6, 20204 min read


Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network
The 11-Year-Old Nonprofit Will Receive a Two-Year Grant for Capacity-Building Efforts LAKEWOOD, CA, USA (Feb. 3, 2020) — Cure CMD is...
Terry Selucky
Feb 3, 20203 min read


Significant Updates to LGMD Definitions and Nomenclature
Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...
Terry Selucky
Jan 17, 20204 min read


Learn About Proactive Pulmonary Care with Our New Guide
Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing...
Rachel Alvarez
Jan 14, 20201 min read
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