#ShareYourRare

Liam: A Rare College Experience

Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...

Rare Disease Week November 2020

Rare Disease Week on Capitol Hill is February 25-28, 2020. The Cure CMD Advocacy Team is looking for more members to attend. Want to join...

Meet Veronica Pini: Researcher, Community Member

“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...

Tricky Questions

One evening about a year ago, Tim and I sat down to watch the movie Arrival, based on the short story “Story of Your Life” by Ted Chiang....

I’ve Got a Feeling . . .

At our older son Peter’s 4-month check up, we mentioned to his pediatrician that we noticed that he only turned his head to the left when...

Community Member Becomes CMD Advocate

Rob Sunris, CMD community member, is father to two great kids, and lives with his family in North Carolina. Global Genes hosted their 7th...

Good Access = Good Business

Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...

Welcome

Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...

Mathea Manley Representing the CMD Community at Rare Disease Week on Capitol Hill

At the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...

Megan Meyer Representing the CMD Community at Rare Disease Week on Capitol Hill

At the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...