Lani Knutson, Advocacy Team LeaderFeb 15, 20202 min2020 Rare Disease Day: Show Your StripesIn the Congenital Muscular Dystrophy (CMD) world, we know our disease is rare. And if you look at the numbers in each subtype, the groups...
Lani Knutson, Advocacy Team LeaderJan 12, 20201 minCure CMD Advocacy Update - January 2020Rare Disease Week 2020 If you are planning to attend Rare Disease Week on February, check out the Next Steps as you prepare to travel to...
Cure CMDNov 16, 20191 minAttention Content Creators: Introducing Cure CMD’s Community Blog Initiative: For You, by YouAs you know, 2019 has been a big year for the CMD community. As 2019 SciFam recedes from view, we’re gathering the lessons we’ve learned...
Terry SeluckyNov 15, 20192 minLiam: A Rare College ExperienceLiam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...