• Lani Knutson

Cure CMD Advocacy Update - January 2020

Rare Disease Week 2020



If you are planning to attend Rare Disease Week on February, check out the

Next Steps as you prepare to travel to D.C. You will also find this

information in your inbox in a separate email if you have let us know that

you plan to attend.

Contact Lani Knutson with questions.


Rare Disease Day

February 29, 2020


Show your stripes! Learn how you

can spread awareness of Rare

Diseases by participating in Rare

Disease Day.


Check out NORD's website to learn more.






Know someone who would like to join the Cure CMD Advocacy Team? Email

us and we'll add them to the list!

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