This week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...

The transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...

AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1 , 2 , and 3 , we’ve covered...

Part 3: Industry Will Get Us There In Part 2 , we talked about the first three steps of drug development. Now, let’s cover the rest. Step...

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...

Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...

When this decade began, Cure CMD was a fledgling organization, less than two years old. For 14-year-old me, the highlight of those early...

As part of the rare disease community, we are all advocates. We push for inclusion and accommodations at schools, teach our doctors...

As you know, 2019 has been a big year for the CMD community. As 2019 SciFam recedes from view, we’re gathering the lessons we’ve learned...

Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...

​​“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...

One evening about a year ago, Tim and I sat down to watch the movie Arrival, based on the short story “Story of Your Life” by Ted Chiang....

At our older son Peter’s 4-month check up, we mentioned to his pediatrician that we noticed that he only turned his head to the left when...

Rob Sunris, CMD community member, is father to two great kids, and lives with his family in North Carolina. Global Genes hosted their 7th...

Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...