What: A $180,000 grant has just been announced by the Muscular Dystrophy Association (MDA) to fund the exploration of potential of gene...

Susan is an "OG" mom who has a son with COL6-CMD. Susan has supported Cure CMD's mission from Day 1. Her ongoing engagement in...

Diane is mother to two wonderful young men, one of whom has COL6-CMD. Diane is one of our "OG" moms - a Cure CMD supporter even before...

Robin's two grandsons were diagnosed with SEPN1-RM in late 2014 after a terrible diagnostic odyssey that led them through three states...

Cure CMD and the impact of the new tax law As many of you know, there is something about living with a rare condition that gives affected...

Char has been a mainstay of Cure CMD almost since inception. Mom, wife, sister-in-law and daughter-in-law to four (and counting)...

Please see the end of this article for Frequently Asked Questions - CALLISTO Phase 1 Clinical Trial Pratteln, Switzerland, April 5, 2018...

Parents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...

At the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...

At the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...

Flu Vaccinations and Proactive Respiratory Care are Critical for People with CMD Pulmonologist and CMD Advocate, Dr. Oscar H. Mayer,...

Cure CMD In May 2016, the Patient-Centered Outcomes Research Institute(PCORI) awarded funds to Cure CMD, a nonprofit, patient advocacy...