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Community Member Becomes CMD Advocate
Rob Sunris, CMD community member, is father to two great kids, and lives with his family in North Carolina. Global Genes hosted their 7th...
Cure CMD
Oct 26, 2018


Welcome New Board Members... Thank You Existing Board!
Cure CMD is delighted to welcome two new additions to the organization’s Board of Directors. They have been working hard over the past...
Terry Selucky
Oct 17, 2018
Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK
Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...
Terry Selucky
Sep 13, 2018


2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research
Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Terry Selucky
Aug 18, 2018


Good Access = Good Business
Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...
Cure CMD
Jun 15, 2018


Welcome
Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...
Lani Knutson, Advocacy Team Leader
Jun 9, 2018
Research Grant Award for Collagen VI
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...
Rachel Alvarez
May 11, 2018
Two Research Grant Awards for LAMA2
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...
Rachel Alvarez
May 1, 2018
Research Grant Award for SEPN1
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...
Rachel Alvarez
May 1, 2018


The Results are in! Cure CMD’s First LA Marathon a Great Boon for CMD Research
The second weekend of March brought the CMD community together in a brand-new way this year with the Los Angeles Marathon, when more than...
Terry Selucky
Apr 30, 2018


Gene Correction Therapy Study, Seed-Funded by Cure CMD, Continues through MDA Grant
What: A $180,000 grant has just been announced by the Muscular Dystrophy Association (MDA) to fund the exploration of potential of gene...
Terry Selucky
Apr 27, 2018


It's Volunteer Week and here's our next highlight: Susan Lee-Miller
Susan is an "OG" mom who has a son with COL6-CMD. Susan has supported Cure CMD's mission from Day 1. Her ongoing engagement in...
Rachel Alvarez
Apr 18, 2018
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