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It's Volunteer Week and Here's Our First Highlight: Charlene York
Char has been a mainstay of Cure CMD almost since inception. Mom, wife, sister-in-law and daughter-in-law to four (and counting)...
Rachel Alvarez
Apr 16, 20181 min read


Santhera Announces Successful Completion of First Clinical Trial with Omigapil in Patients with Cong
Please see the end of this article for Frequently Asked Questions - CALLISTO Phase 1 Clinical Trial Pratteln, Switzerland, April 5, 2018...
Cure CMD
Apr 4, 201811 min read


Parents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan Di
Parents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...
Terry Selucky
Mar 27, 20184 min read


Mathea Manley Representing the CMD Community at Rare Disease Week on Capitol Hill
At the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMD
Jan 27, 20183 min read


Megan Meyer Representing the CMD Community at Rare Disease Week on Capitol Hill
At the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMD
Jan 27, 20182 min read


An Important Message About the Flu
Flu Vaccinations and Proactive Respiratory Care are Critical for People with CMD Pulmonologist and CMD Advocate, Dr. Oscar H. Mayer,...
Cure CMD
Jan 18, 20182 min read


Cure CMD hosts 380 attendees at its 2017 Scientific Family Conference
Cure CMD In May 2016, the Patient-Centered Outcomes Research Institute(PCORI) awarded funds to Cure CMD, a nonprofit, patient advocacy...
Cure CMD
Nov 12, 20171 min read


Cure CMD's 5-Year Research Goals
Cure CMD has achieved significant impact in its first nine years as the only nonprofit organization in the U.S. dedicated specifically to...
Cure CMD
Nov 10, 20171 min read


Team Cure CMD will be an official charity partner at the Los Angeles Marathon
Dear California CMD Community! Cure CMD has been accepted as a charity partner for the 2018 Los Angeles Marathon on March 18th. The...
Cure CMD
Aug 3, 20171 min read


Cure CMD welcomes three new board members
Cure CMD welcomed three new members to the Board of Directors in July 2017. With the addition of Dr. Carla Grossman, Dr. Oscar H. Mayer,...
Cure CMD
Jul 10, 20171 min read


CMDIR Newsletter
CMD Tissue Repository Serving families and researchers in the quest to find treatment solutions. Click here for the latest news from...
Cure CMD
Mar 2, 20171 min read


2017 Kicks Off with New Treatments for Pediatric Neuromuscular Disorders
The last week of December 2016 finds us with the first and second ever FDA-approved treatments for two groups of affected individuals...
Cure CMD
Jan 8, 20173 min read
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