top of page
Search


Good Access = Good Business
Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...
Cure CMD
Jun 15, 2018


Welcome
Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...
Lani Knutson, Advocacy Team Leader
Jun 9, 2018


The Results are in! Cure CMD’s First LA Marathon a Great Boon for CMD Research
The second weekend of March brought the CMD community together in a brand-new way this year with the Los Angeles Marathon, when more than...
Terry Selucky
Apr 30, 2018


It's Volunteer Week and here's our next highlight: Susan Lee-Miller
Susan is an "OG" mom who has a son with COL6-CMD. Susan has supported Cure CMD's mission from Day 1. Her ongoing engagement in...
Rachel Alvarez
Apr 18, 2018


It's Volunteer Week and here's our next highlight: Diane Smith-Hoban
Diane is mother to two wonderful young men, one of whom has COL6-CMD. Diane is one of our "OG" moms - a Cure CMD supporter even before...
Rachel Alvarez
Apr 18, 2018
It's Volunteer Week and Here's Our Next Highlight: Robin Swallow
Robin's two grandsons were diagnosed with SEPN1-RM in late 2014 after a terrible diagnostic odyssey that led them through three states...
Rachel Alvarez
Apr 17, 2018


It's Volunteer Week and Here's Our First Highlight: Charlene York
Char has been a mainstay of Cure CMD almost since inception. Mom, wife, sister-in-law and daughter-in-law to four (and counting)...
Rachel Alvarez
Apr 16, 2018


Mathea Manley Representing the CMD Community at Rare Disease Week on Capitol Hill
At the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMD
Jan 27, 2018


Megan Meyer Representing the CMD Community at Rare Disease Week on Capitol Hill
At the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMD
Jan 27, 2018
bottom of page
