We often hear this from our friends, even those who’ve been generous to us in the past. In this day and age, it’s a legitimate question...

At the height of COVID, many of us were learning that “zoom” was more than just a verb, Cure CMD began sponsoring Happy Hours. As we...

After nearly a year of planning, it happened this summer: One of the most fun, educational, bonding, exhausting, rejuvenating,...

- One family’s determination turns their fundraising efforts into a huge success for SELENON - In November 2020, (then) one-year-old Finn...

When our older son was 2 1/2 years old, we were told he has a rare neuromuscular disease that doctors and researchers knew very little...

Progress toward treatments for CMD is a battle fought on several fronts. Clinicians work to improve diagnostics, care, and understand the...

On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...

Cure CMD is thrilled to announce a third year of funding from the Chan-Zuckerberg Initiative’s Rare As One Network, an effort to...

Telehealth services have been critical to maintaining safe and consistent access to health care for patients with rare diseases such as...

Happy Rare Disease Day! Started in 2008, Rare Disease Day is an international event focused on bringing awareness to the more than 7,000...

I remember the night I was asked to be a part of the production, I was so thrilled, I almost cried! I’ll never forget what one of my...

Executive Director Rachel Alvarez shares a deep dive into her history as a rare disease patient, and what it means to lead Cure CMD.