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Cure CMD
May 1, 20231 min read
Medicaid & CHIP Re-enrollment Returns!
As the United States ends its COVID 19 public health emergency, the continuous enrollment provision is coming to an imminent end....
Cure CMD
Apr 27, 20232 min read
Never Too Old to Follow Your Dreams
During COVID, I had a bit of extra time on my hands and wanted to create something that was accessible and fun for everyone to play. One...
Cure CMD
Apr 10, 20231 min read
Giving Appreciated Securities: One Way to Support Cure CMD
For members of the CMD ommunity who are charitably inclined, one giving option is donating shares of appreciated securities. Donating...
Cure CMD
Apr 10, 20234 min read
Finding What Makes Me Feel Free
My name is Saif Aslam (under the pen name, Ud Din), a CMD community member, and am the author of What I Could’ve Been, a children’s book...
Cure CMD
Mar 29, 202313 min read
Mom shares journey to accepting son’s CMD diagnosis
On April 29, 2016, Isaiah-Levi Anthony Johnson was pushed into this world. The nurse handed me my perfectly healthy baby. He was to be my...
Cure CMD
Mar 27, 20233 min read
Cure CMD x Patients Rising to Provide Support
Cure CMD Partners with the Patient Helpline to Provide Support and Navigation Services LAKEWOOD, CA — March 27, 2023 — Cure CMD announces...
Lani Knutson, Advocacy Team Leader
Mar 13, 20233 min read
Rare Disease Week on Capitol Hill 2023 Recap
In February 2023, members of the Cure CMD Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in...
Cure CMD
Mar 8, 20232 min read
"We Are Not Done Yet”: Remembering Disability Rights Activist, Judy Heumann
Judith “Judy” Heumann — widely regarded as “the mother” of the disability rights movement — passed away in Washington, D.C. on the...
Kierra Sunris
Feb 28, 20233 min read
2023 #ShowYourStripes: My Disability Journey, The Gen Z Way
I thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...
Lani Knutson, Advocacy Team Leader
Feb 27, 20231 min read
Advocacy Team Preparing for RDW 2023
This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...
Cure CMD
Feb 17, 20232 min read
Cure CMD Awarded MDA Advocacy Grant
Cure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...
Doenica Palacio
Feb 15, 20231 min read
Use Your Voice for Change
In 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...
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