top of page
Search


Wrapping Up: 2023 Creative Contest
Congratulations to this year's Creative Contest winners! Thank you to all who entered & helped support this creative initiative. See the...
Cure CMD
Oct 4, 20231 min read


Save the Date: 2024 Rare Disease Week on Capitol Hill
Cure CMD's Advocacy Team is beginning plans for the next Rare Disease Week on Capitol Hill, scheduled for February 25-28, 2024! The...
Lani Knutson, Advocacy Team Leader
Oct 4, 20231 min read


Legislative Advocacy: Connecting With Your Legislators
Continuing Cure CMD’s 2023 Your Voice Matters Initiative, Lani Knutson hosted an interactive session focused on learning how to connect...
Lani Knutson, Advocacy Team Leader
Oct 3, 20231 min read


Join Team Cure CMD for the 2024 TCS New York City Marathon
Cure CMD is proud to be joining the 2024 TCS New York City Marathon on November 3, 2024, as an official charity partner to raise funds in...
Cure CMD
Oct 3, 20231 min read


MDA Awards 2 CMD Research Grants
The Muscular Dystrophy Association recently announced their 2023 Research Grants, including two awards to CMD researchers! Dr. Kevin...
Cure CMD
Oct 3, 20231 min read


An Exciting Milestone for LAMA2-CMD
Expanding on nearly a decade of partnership in the life sciences, the Translational Sciences team at UPMC Enterprises and the University...
Cure CMD
Sep 29, 20232 min read


CMD Community Members Fan Out to Spread Awareness
Two recent sporting events supporting CMD awareness and community.
Cure CMD
Jul 31, 20231 min read


Video Game Livestream and Fundraiser
Check out Community Member Kierra Sunris in her nightly Twitch livestream throughout July!
Cure CMD
Jul 31, 20231 min read


Team Cure CMD Raises $140K to Support CMD Research
This year, the MDBR's Team Cure CMD raised $140k for research.
Cure CMD
Jul 31, 20231 min read


Watch The Tenacity of Hope
The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital...
Cure CMD
Jul 31, 20231 min read


Accessible Air Travel
By September 30, 2023, Congress must reauthorize the Federal Aviation Act (FAA). Changes can be made when an act is reauthorized, and advoca
Lani Knutson, Advocacy Team Leader
Jul 24, 20232 min read


Moving On
In the summer of 2020, I heard an interview with an expert on infectious disease and pandemics. In the interview, he warned that the...
Lani Knutson, Advocacy Team Leader
Jul 21, 20232 min read
bottom of page






