Check out Community Member Kierra Sunris in her nightly Twitch livestream throughout July!

This year, the MDBR's Team Cure CMD raised $140k for research.

The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital...

By September 30, 2023, Congress must reauthorize the Federal Aviation Act (FAA). Changes can be made when an act is reauthorized, and advoca

In the summer of 2020, I heard an interview with an expert on infectious disease and pandemics. In the interview, he warned that the...

Many steps must be taken to ensure you get the "full college experience" that other kids get while staying on campus. Here, I will share wha

Prof. Jeanette Erdmann, CMD Researcher and CMD-affected individual passed away unexpectedly after a tragic fall.

Cure CMD has been blessed with gifts in many forms over the years from friends, families, and others with a wide variety of connections...

Cure CMD's film, The Tenacity of Hope, features the raw and real experiences of those living with congenital muscular dystrophy.

Hear Rachel Alvarez and Mokol Lek share stories about navigating diagnosis and working for the neuromuscular community.

May is Mental Health Awareness Month, the focus of Rare Disease Legislative Advocates (RDLA) monthly webinar. You can view the webinar...

“We look forward to partnering with Patient Worthy, to create targeted and reliable community resources, and continue to grow awareness...