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Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
Kelly Berger
Feb 2, 20242 min read


Cure CMD Awarded 2nd MDA Advocacy Grant
LAKEWOOD, CA — February 1, 2024 — Cure CMD is excited to be one of the seven recipient organizations of the Muscular Dystrophy...
Lani Knutson, Advocacy Team Leader
Feb 1, 20242 min read


10 Energy Conservation *Tips: My Workout Journey With CMD
I am 30 and I have been living with SELENON-Related Myopathy my whole life. This rare form of muscular dystrophy has affected me in many...
Stephanie Chicas
Jan 30, 20244 min read


Adaptive Sailing on the Chesapeake Bay
On September 29, I woke up eagerly because I was going sailing with my family, and not just any kind of sailing, adaptive sailing. The...
Celine Rifai
Jan 3, 20242 min read


2023 Inclusive Product Guide
A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the
Cure CMD
Dec 3, 20235 min read


Parental Guilt
For all the unintentionally insensitive and thoughtless things people have said to me over the years, no one has ever asked me the...
Lani Knutson, Advocacy Team Leader
Nov 12, 20232 min read


An Inclusive Halloween For All
Inclusive Halloween ideas for all abilities. Find adaptive costumes and safely navigate accessible trick-or-treating options with a mobility
Cure CMD
Oct 24, 20233 min read


Rare Disease Week Travel Stipend
Since 2018, members of the CMD community have attended Rare Disease Week on Capitol Hill hosted by the Rare Disease Legislative...
Lani Knutson, Advocacy Team Leader
Oct 6, 20232 min read


Wrapping Up: 2023 Creative Contest
Congratulations to this year's Creative Contest winners! Thank you to all who entered & helped support this creative initiative. See the...
Cure CMD
Oct 4, 20231 min read


Save the Date: 2024 Rare Disease Week on Capitol Hill
Cure CMD's Advocacy Team is beginning plans for the next Rare Disease Week on Capitol Hill, scheduled for February 25-28, 2024! The...
Lani Knutson, Advocacy Team Leader
Oct 4, 20231 min read


Legislative Advocacy: Connecting With Your Legislators
Continuing Cure CMD’s 2023 Your Voice Matters Initiative, Lani Knutson hosted an interactive session focused on learning how to connect...
Lani Knutson, Advocacy Team Leader
Oct 4, 20231 min read


Join Team Cure CMD for the 2024 TCS New York City Marathon
Cure CMD is proud to be joining the 2024 TCS New York City Marathon on November 3, 2024, as an official charity partner to raise funds in...
Cure CMD
Oct 4, 20231 min read
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