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Youth Advocate Attends First Virtual Hill Day
I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.
Kassidy C.
Jun 27, 2024


iMM Joins the MAGIC Consortium to Advance Research on Muscular Dystrophies
The MAGIC research team welcomes iMM to the consortium to add a cellular perspective to muscle-on-chip technologies
Gustavo Dziewczapolski
Jun 6, 2024


Omigapil Publication Now Available
Long-awaited publication about the Phase 1 Open-Label Study of Omigapil in Patients With LAMA2- or COL6-Related Dystrophy now published.
Rachel Alvarez
Jun 5, 2024


Research Update: SELENON
We are honored to support groundbreaking discoveries related to SELENON-Related Disorders.
Gustavo Dziewczapolski
May 29, 2024


Interview with Gustavo Dziewczapolski: Doctor in Neuropharmacology and Scientific Director of Cure CMD
Explore an in-depth interview with Gustavo Dziewczapolski, Doctor in Neuropharmacology and Scientific Director of Cure CMD. Gain insights in
Giulia Da Re
May 23, 2024


2024 Myology Congress Recap
Cure CMD’s Scientific Director, Dr. Gustavo Dziewczapolski, provides a recap of his attendance at the 8th International Myology Congress in
Gustavo Dziewczapolski
May 1, 2024


Research Update: Collagen 6
We are honored to support groundbreaking discoveries in Collagen 6-Related Dystrophies (COL6-RD).
Gustavo Dziewczapolski
Apr 16, 2024


Never Stop Driving: Cure CMD's Dedication to Community Member Simon Cantos
Honoring community member Simon Cantos and his legacy in the congenital muscular dystrophy community.
Kelly Berger
Apr 2, 2024


My Rare Advocacy Journey
My rare disease advocacy journey started later in life. Like many, I had always felt too overwhelmed and unsure of how to start and was...
Kelly Berger
Mar 26, 2024


2024 Rare Disease Week Recap
Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.
Lani Knutson, Advocacy Team Leader
Mar 20, 2024


Uncharted Territory
Like most families with a high school junior, we have begun the college discussion at our house. Higher ed is not uncharted territory for...
Lani Knutson, Advocacy Team Leader
Feb 5, 2024


Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
Kelly Berger
Feb 2, 2024
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