Rare Disease Week 2020 If you are planning to attend Rare Disease Week on February, check out the Next Steps as you prepare to travel to...

When this decade began, Cure CMD was a fledgling organization, less than two years old. For 14-year-old me, the highlight of those early...

Cure CMD has led the design and release of a comprehensive mobile app focused on Congenital Muscular Dystrophy (CMD) -- designed by the...

If you plan to attend, your next steps are: Read Rob Sunris' blog post on last year's Rare Disease Week. Attend the Information Webinar...

As part of the rare disease community, we are all advocates. We push for inclusion and accommodations at schools, teach our doctors...

As you know, 2019 has been a big year for the CMD community. As 2019 SciFam recedes from view, we’re gathering the lessons we’ve learned...

Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...

A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A...

Rare Disease Week on Capitol Hill is February 25-28, 2020. The Cure CMD Advocacy Team is looking for more members to attend. Want to join...

​​“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...

One evening about a year ago, Tim and I sat down to watch the movie Arrival, based on the short story “Story of Your Life” by Ted Chiang....

Dione Kobayashi has been part of the Cure CMD Family for 8+ years, serving on both the Scientific Advisory Board and Board of Directors....