If you are a parent of a child with special needs, a disability, or a rare disease, you’ve probably heard the poem Welcome to Holland. By...

The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...

Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...

My daughter Lumina Jubilee was diagnosed with Walker-Warburg Syndrome--the most severe form of congenital muscular dystrophy--in utero at...

This week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...

Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...

Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...

After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...

Head’s Up in Your Community What’s your Communication Style?  Cure CMD wants to know more about how you like to engage with us. Will you...

The Cure CMD Advocacy Team was represented by 13 advocates at Rare Disease Week in Washington, D.C. during the last week of February....

With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...