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Cure CMD Volunteer Charlene York Honored as NORD Rare Impact Awardee
Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we...
Terry Selucky
Oct 17, 2020


Up close and personal with Cure CMD's Executive Director
How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...
Rachel Alvarez
Oct 14, 2020


Meet Molly
Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...
Lani Knutson, Advocacy Team Leader
Sep 4, 2020


Sporting a Love for Sports (Part 1): How it Began
Check out Part 2 of Paul's 2-part series From a young age, I have always had an undying love for sports. My earliest sports memories are...
Paul Desaulniers
Sep 4, 2020


Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Terry Selucky
Aug 19, 2020


An Accessible Social Life During Self-Isolation
The COVID-19 pandemic has been brutal, especially in the United States. Both the actual impact of the virus itself and the mental strain...
Luke Hoban
Jul 28, 2020


You Can Never Go Back
If you are a parent of a child with special needs, a disability, or a rare disease, you’ve probably heard the poem Welcome to Holland. By...
Lani Knutson, Advocacy Team Leader
Jul 23, 2020


CMD Virtual Happy Hour
The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
Mindy Roberts
Jul 6, 2020


Peer to Peer Conversations: Connecting CMD to CMD
Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
Robin Swallow
Jul 6, 2020


Our Journey with Genetics
My daughter Lumina Jubilee was diagnosed with Walker-Warburg Syndrome--the most severe form of congenital muscular dystrophy--in utero at...
Angela Uncles
May 26, 2020


Managing Caregivers During Quarantine
This week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...
Luke Hoban
May 26, 2020


Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University
Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...
Rachel Alvarez
May 6, 2020
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