Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...

Use the template here to urge your Congressperson to support it! In 1983, the U.S. Congress passed The Orphan Drug Act, a law that...

Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...

When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...

We recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...

Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...

CMD has given me many things throughout my life: A wonderful community and the ability to play wheelchair hockey are at the top of the...

I was born in 1976 and my parents always knew some things were different, but my physical anomalies were always blamed on a birth...

We wind our way up the parking ramp at Children’s of Wisconsin every six months. After parking, we make the long trek on foot through the...

It is that time of the century, about twenty years in, for our regularly scheduled once-in-a-lifetime global pandemic. A pandemic is a...

Check out Part 1 of Paul's 2-part series There are some days that leave a lasting mark on your life. Years later you’re able to look back...

This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...

High school senior brings light to SEPN1 muscular dystrophy on TikTok Wrapping her fingers around her wrist so they touch, folding her...

Find the Cure CMD app in both the App Store and Google Play by searching “Cure CMD” It feels like several lifetimes ago at this point...

Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we...

How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...

Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...

Check out Part 2 of Paul's 2-part series From a young age, I have always had an undying love for sports. My earliest sports memories are...

The COVID-19 pandemic has been brutal, especially in the United States. Both the actual impact of the virus itself and the mental strain...