Cure CMDApr 30, 20212 minSciFam 2021 is Around the CornerAn all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Lani Knutson, Advocacy Team LeaderApr 6, 20212 minSix ThingsSix Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...
Luke HobanFeb 25, 20213 minGetting my COVID vaccineWhen various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...
Cure CMDFeb 3, 20212 minTaking It One Day At A TimeWe recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...