Many steps must be taken to ensure you get the "full college experience" that other kids get while staying on campus. Here, I will share wha

Prof. Jeanette Erdmann, CMD Researcher and CMD-affected individual passed away unexpectedly after a tragic fall.

Cure CMD has been blessed with gifts in many forms over the years from friends, families, and others with a wide variety of connections...

Cure CMD's film, The Tenacity of Hope, features the raw and real experiences of those living with congenital muscular dystrophy.

Hear Rachel Alvarez and Mokol Lek share stories about navigating diagnosis and working for the neuromuscular community.

May is Mental Health Awareness Month, the focus of Rare Disease Legislative Advocates (RDLA) monthly webinar. You can view the webinar...

“We look forward to partnering with Patient Worthy, to create targeted and reliable community resources, and continue to grow awareness...

As the United States ends its COVID 19 public health emergency, the continuous enrollment provision is coming to an imminent end....

During COVID, I had a bit of extra time on my hands and wanted to create something that was accessible and fun for everyone to play. One...

For members of the CMD ommunity who are charitably inclined, one giving option is donating shares of appreciated securities. Donating...

My name is Saif Aslam (under the pen name, Ud Din), a CMD community member, and am the author of What I Could’ve Been, a children’s book...

On April 29, 2016, Isaiah-Levi Anthony Johnson was pushed into this world. The nurse handed me my perfectly healthy baby. He was to be my...