Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...

When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...

We recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...

Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...

CMD has given me many things throughout my life: A wonderful community and the ability to play wheelchair hockey are at the top of the...

Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...

I was born in 1976 and my parents always knew some things were different, but my physical anomalies were always blamed on a birth...

We wind our way up the parking ramp at Children’s of Wisconsin every six months. After parking, we make the long trek on foot through the...

It is that time of the century, about twenty years in, for our regularly scheduled once-in-a-lifetime global pandemic. A pandemic is a...

Check out Part 1 of Paul's 2-part series There are some days that leave a lasting mark on your life. Years later you’re able to look back...

Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...

This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...

High school senior brings light to SEPN1 muscular dystrophy on TikTok Wrapping her fingers around her wrist so they touch, folding her...

Find the Cure CMD app in both the App Store and Google Play by searching “Cure CMD” It feels like several lifetimes ago at this point...

Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we...

How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...

Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...