Angela UnclesMay 26, 20203 minOur Journey with GeneticsMy daughter Lumina Jubilee was diagnosed with Walker-Warburg Syndrome--the most severe form of congenital muscular dystrophy--in utero at...
Luke HobanMay 26, 20203 minManaging Caregivers During QuarantineThis week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...
Kierra SunrisApr 7, 20204 minAcademic AdvocacyThe transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...
Sarah FoyeMar 11, 20206 minCollege SearchAJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...