Updated: Oct 27, 2021
Cure CMD In May 2016, the Patient-Centered Outcomes Research Institute(PCORI) awarded funds to Cure CMD, a nonprofit, patient advocacy organization focused on advancing research for treatments and a cure for the congenital muscular dystrophies (CMD). The $250,000 PCORI award allowed Cure CMD to hold five conferences over the course of one year, leveraging the momentum built through in-person and online meetings to usher the community toward a cure for the CMDs.
Cure CMD’s 2017 Scientific Family Conference was the culmination of these efforts, bringing together more world-renowned CMD scientists, researchers, and clinicians into one place than ever before. About 80 CMD experts and 300 affected individuals and their family members were in attendance. The community reviewed the latest research, discoveries, and management techniques. Many new friendships and connections were made between affected individuals and their families (many whom had never met another person with CMD). The conference was live streamed and recording of sessions are now available on our website (see 2017 Scientific Conferences).