Cure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...

In 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...

For the first time since 2020, 2023 Rare Disease Week on Capitol Hill will happen in person, in Washington D.C., from February 28 to...

A big Thank You to everyone who participated in our 2022 Scientific and Family Conference! If you did not have the opportunity to...

Get Caught Up on our Webinar Series Our goal at Cure CMD is to bring you educational content relatable to your CMD journey to support...

Through my myriad of experiences over many years, my eyes have been opened to the astounding and vast diversity of people. Specifically,...

Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...

My name is Stephanie Chicas. I am 29 years old. This is the story of how recurrent lung infections and one traumatic day prompted me to...

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...

One of my favorite podcasts is Hidden Brain. I find it so fascinating, and there is so much to love – social science, human behavior...

My family and I recently had a chance to visit Heritage Museums and Gardens in Sandwich, MA. It struck me how well this place went above...

Every year, the Million Dollar Bike Ride (MDBR), hosted by the Penn Medicine Orphan Disease Center (ODC), raises funds for a handful of...