My name is Stephanie Chicas. I am 29 years old. This is the story of how recurrent lung infections and one traumatic day prompted me to...

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...

One of my favorite podcasts is Hidden Brain. I find it so fascinating, and there is so much to love – social science, human behavior...

My family and I recently had a chance to visit Heritage Museums and Gardens in Sandwich, MA. It struck me how well this place went above...

Every year, the Million Dollar Bike Ride (MDBR), hosted by the Penn Medicine Orphan Disease Center (ODC), raises funds for a handful of...

We often hear this from our friends, even those who’ve been generous to us in the past. In this day and age, it’s a legitimate question...

At the height of COVID, many of us were learning that “zoom” was more than just a verb, Cure CMD began sponsoring Happy Hours. As we...

After nearly a year of planning, it happened this summer: One of the most fun, educational, bonding, exhausting, rejuvenating,...

- One family’s determination turns their fundraising efforts into a huge success for SELENON - In November 2020, (then) one-year-old Finn...

When our older son was 2 1/2 years old, we were told he has a rare neuromuscular disease that doctors and researchers knew very little...

Progress toward treatments for CMD is a battle fought on several fronts. Clinicians work to improve diagnostics, care, and understand the...

On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...