Judith “Judy” Heumann — widely regarded as “the mother” of the disability rights movement — passed away in Washington, D.C. on the...

I thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...

This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...

Cure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...

In 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...

For the first time since 2020, 2023 Rare Disease Week on Capitol Hill will happen in person, in Washington D.C., from February 28 to...

A big Thank You to everyone who participated in our 2022 Scientific and Family Conference! If you did not have the opportunity to...

Get Caught Up on our Webinar Series Our goal at Cure CMD is to bring you educational content relatable to your CMD journey to support...

Through my myriad of experiences over many years, my eyes have been opened to the astounding and vast diversity of people. Specifically,...

Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...

My name is Stephanie Chicas. I am 29 years old. This is the story of how recurrent lung infections and one traumatic day prompted me to...

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...