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I’ve Got a Feeling . . .
At our older son Peter’s 4-month check up, we mentioned to his pediatrician that we noticed that he only turned his head to the left when...
Lani Knutson, Advocacy Team Leader
Jan 20, 20192 min read


Cure CMD Co-Funds SEPN1 Research Project with AFM
Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...
Terry Selucky
Oct 31, 20182 min read


Community Member Becomes CMD Advocate
Rob Sunris, CMD community member, is father to two great kids, and lives with his family in North Carolina. Global Genes hosted their 7th...
Cure CMD
Oct 26, 20183 min read


Welcome New Board Members... Thank You Existing Board!
Cure CMD is delighted to welcome two new additions to the organization’s Board of Directors. They have been working hard over the past...
Terry Selucky
Oct 17, 20182 min read
Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK
Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...
Terry Selucky
Sep 13, 20182 min read


2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research
Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Terry Selucky
Aug 18, 20185 min read


Good Access = Good Business
Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...
Cure CMD
Jun 15, 20182 min read


Welcome
Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...
Lani Knutson, Advocacy Team Leader
Jun 8, 20183 min read
Research Grant Award for Collagen VI
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...
Rachel Alvarez
May 11, 20181 min read
Two Research Grant Awards for LAMA2
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...
Rachel Alvarez
May 1, 20181 min read
Research Grant Award for SEPN1
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...
Rachel Alvarez
May 1, 20181 min read


The Results are in! Cure CMD’s First LA Marathon a Great Boon for CMD Research
The second weekend of March brought the CMD community together in a brand-new way this year with the Los Angeles Marathon, when more than...
Terry Selucky
Apr 30, 20181 min read
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