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2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research
Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Terry Selucky
Aug 18, 20185 min read


Good Access = Good Business
Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...
Cure CMD
Jun 15, 20182 min read


Welcome
Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA)...
Lani Knutson, Advocacy Team Leader
Jun 9, 20183 min read
Research Grant Award for Collagen VI
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...
Rachel Alvarez
May 11, 20181 min read
Two Research Grant Awards for LAMA2
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...
Rachel Alvarez
May 1, 20181 min read
Research Grant Award for SEPN1
Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...
Rachel Alvarez
May 1, 20181 min read


The Results are in! Cure CMD’s First LA Marathon a Great Boon for CMD Research
The second weekend of March brought the CMD community together in a brand-new way this year with the Los Angeles Marathon, when more than...
Terry Selucky
Apr 30, 20181 min read


Gene Correction Therapy Study, Seed-Funded by Cure CMD, Continues through MDA Grant
What: A $180,000 grant has just been announced by the Muscular Dystrophy Association (MDA) to fund the exploration of potential of gene...
Terry Selucky
Apr 27, 20182 min read


It's Volunteer Week and here's our next highlight: Susan Lee-Miller
Susan is an "OG" mom who has a son with COL6-CMD. Susan has supported Cure CMD's mission from Day 1. Her ongoing engagement in...
Rachel Alvarez
Apr 18, 20181 min read


It's Volunteer Week and here's our next highlight: Diane Smith-Hoban
Diane is mother to two wonderful young men, one of whom has COL6-CMD. Diane is one of our "OG" moms - a Cure CMD supporter even before...
Rachel Alvarez
Apr 18, 20181 min read
It's Volunteer Week and Here's Our Next Highlight: Robin Swallow
Robin's two grandsons were diagnosed with SEPN1-RM in late 2014 after a terrible diagnostic odyssey that led them through three states...
Rachel Alvarez
Apr 17, 20181 min read


2018 Tax Law: What We Know for Sure
Cure CMD and the impact of the new tax law As many of you know, there is something about living with a rare condition that gives affected...
Cure CMD
Apr 17, 20183 min read
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