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New & Improved CMDIR Now Live!
The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Rachel Alvarez
Oct 23, 20202 min read


8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming
Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...
Lani Knutson, Advocacy Team Leader
Oct 23, 20202 min read


You Have the Power to Drive Research
This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...
Terry Selucky
Oct 21, 20201 min read


CMD Community Member's TikTok accumulates over 40,000 followers
High school senior brings light to SEPN1 muscular dystrophy on TikTok Wrapping her fingers around her wrist so they touch, folding her...
Cure CMD
Oct 21, 20202 min read


How I Made the Official Cure CMD App
Find the Cure CMD app in both the App Store and Google Play by searching “Cure CMD” It feels like several lifetimes ago at this point...
Liam Miller
Oct 19, 20204 min read


Cure CMD Volunteer Charlene York Honored as NORD Rare Impact Awardee
Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we...
Terry Selucky
Oct 16, 20201 min read


Up close and personal with Cure CMD's Executive Director
How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...
Rachel Alvarez
Oct 14, 20202 min read


Meet Molly
Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...
Lani Knutson, Advocacy Team Leader
Sep 4, 20202 min read


Sporting a Love for Sports (Part 1): How it Began
Check out Part 2 of Paul's 2-part series From a young age, I have always had an undying love for sports. My earliest sports memories are...
Paul Desaulniers
Sep 4, 20204 min read


Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Terry Selucky
Aug 19, 20205 min read


An Accessible Social Life During Self-Isolation
The COVID-19 pandemic has been brutal, especially in the United States. Both the actual impact of the virus itself and the mental strain...
Luke Hoban
Jul 28, 20202 min read


You Can Never Go Back
If you are a parent of a child with special needs, a disability, or a rare disease, you’ve probably heard the poem Welcome to Holland. By...
Lani Knutson, Advocacy Team Leader
Jul 22, 20203 min read
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